Any help greatly appreciated

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Hi there so basically my partner was told he has testicular cancer. It’s a variant of sex cord stromal tumor and apparently is one of the rarest ones out there with only a few cases. 

They have removed the testicle but they have said as it is so rare this doesn’t show up in any tests. They have said if it spreads they are stuck as they don’t no what to do!! 

can anyone offer any help or advice pls 

tia x