Both testicles removed

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I had my right testicle removed when I was 18months old because it was undescended. So I only ever had one testicle, and it worked fine, the testosterone tests I had in my 20's showed I was at the top end of the testosterone scale. 

A day before my 30th birthday I was diagnosed with testicular cancer in the remaining testicle, and I underwent an orchidectomy on 07 March. The tumour was pure seminoma, 6/7cm.  I'm not sure what stage i'm at yet, and still waiting for my CT scan/ appt with the oncologist which will be next week. I did have a CT scan in early feb which was clear. 

Having the remaining testicle removed means I have to go on TRT as my body isn't producing any testosterone itself (other than the adrenal glands which only produces 10%). 

I wondered if anyone else has had to have both testicles removed? and what their experience has been with TRT? I'm currently using Testogel (16.2 x 2 pumps) and considering the injections because they seem easier. 

I'm concerned my testosterone levels won't return to the level they were before the orchidectomy, there's stories of people gaining weight, low mood, no energy etc. I'm hoping because i've started on the TRT immediately after the op I can return to my normal level in a few months. 

Any experience/ input from someone who has ended up with both testicles being removed would be gratefully appreciated!

Thanks 

  • Hi tjm3,

    Thank you for reaching out to the Online Community, I'm Eliza from the Community team. Here in the Community team we look after the Online Community.

    I hope that you will hear back from someone else who has had a similar experience soon. In the meantime I hope you have been finding it helpful to look through other posts in the group.

    Please remember you can also contact our Support Line today. Our support team are available 7 days a week, 8am-8pm on freephone 0808 808 00 00email or live webchat. They are here to listen and help you find the right support. They’re here to chat, and they can also help with any questions you have. Our teams include our nurse specialists who may be able to give you information and guidance around testosterone levels after an orchidectomy.

    If you need any further help around the Online Community and finding support, please feel welcome to get back in touch with us over email to community@macmillan.org.uk.

    Take care, 

    Eliza
    Macmillan Community Team

  • Hi my husband had both removed he’s on nebido injections he was getting a lump after injection but putting it in arm now but he’s okay 

  • Hi tjm3, I see you posted this over 1 year ago, how are you now?

  • Hi he gets very tired falls asleep in conversations no libido they are going to alternate we’re they inject just had another scare with a mole but was benign so this second testicular was 10 years but going to keep him under surveillance he has a very easy go lucky attitude to it thanks for asking