I just had my total testosterone level checked after having had an orchidectomy a few months ago.
it was 5.0nmol/L. I was told this is in the normal range. The hospital’s normal range is 2.5 to 22. This is one of the top cancer hospitals in the country.
I honestly don’t know where to go with this.
As I’m still under surveillance, I’m not sure if it’s sensible to go with a private TRT clinic.
I could try to explain to the hospital that their range is wrong, by referring to the BSSM guidelines for example. But this might be a waste of time.
I have all the symptoms of low testosterone and have had them since the operation. The hospital is aware of this.
Hi Bilston
I can't help with your question as to whether you should go to a private TRT clinic or not but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list where it might be more easily seen.
Have you spoken to your cancer nurse specialist, sometimes referred to as a keyworker, as they should be able to answer any questions you have?
It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
Get your gp to do a free testosterone test, that will show below normal and get you on the path of an endocrinologist... If not then see a private clinic. The test privately is not too expensive. Then try and go back to the gp..
I had years trying to get the oncologist I was seeing to do something about my low T but in the end did the above
don'tlive with it.
Apr 2016 - betaHCG raised --> Orchidectomy- Left Testicle removed - Stage 1 100% Seminoma Surveillance only.
Surveillance : Year 2017 - CLEAR ./ Year 2018 - CLEAR / Year 2019 - CLEAR / Year 2020 -
Thank you, that’s very helpful.
My GP has already referred my case to an endocrinologist. The endocrinologist told my GP that he would not support prescribing testosterone because of the risk of causing prostate cancer.
Yes I am kept hearing that from everyone but I still pushed because I said back to them that if I am trying to get my levels into normal, then how can normal levels new increasing my risk. I'd be the same as someone with 2 testicles.
Low T has many many risks too...
Apr 2016 - betaHCG raised --> Orchidectomy- Left Testicle removed - Stage 1 100% Seminoma Surveillance only.
Surveillance : Year 2017 - CLEAR ./ Year 2018 - CLEAR / Year 2019 - CLEAR / Year 2020 -
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