Hello all
First used this site two years ago , found it very beneficial then so looking for a bit of advice.
Quick summary was diagnosed with TC coming up to 2 years ago , had the orchidectomy and lost lefty, and gained a new nick name down the rugby club! Staged as pt2 seminoma so had one shot of Carboplatin two months later to bring the recurrence rate down from 20% to 5%.
Fast forward two years , September’s check up showed high LDH so was sent for a scan last week, then get the call 4 days later, “you need to come in, and by the way have you any back pain, “ ....”well off an on aches but put that down to sport.....”.
Long story short diagnosed as a relapse as have a retroperitoneal nodal mass so booked in for 4 cycles of Etoposide and Cisplatin chemo, told 5 days staying in hospital , then escape for three weeks and repeat 4 times. No visitors allowed due to good old COVID so will probably go nuts...or Nut (pardon the pun)
Can anyone give any tips on EP ie what to expect , how you were affected and any “wish I had known that...” also what the hell do you do to pass the time??
A big shout out though to the NHS and the way we are followed up and looked after with surveillance, it certainly works!
Cheers all
KOR
