Long time survivor concerned about recurrence in lymph nodes.

FormerMember
FormerMember
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Hi all.

Hoping everyone is doing well and where possible enjoying the holiday weather.

I'm 49 and had stage 1 Seminoma in 2001. I received orchidectomy and several weeks of follow-up radiation to treat left-sided abdominal and paraaortic lymph nodes. In 1988 I had emergency surgery to fix an inguinal hernia on the right side and herein lies the problem.

Over the last few years I've noticed the lymph nodes below the hernia repair line (on the right side) slowly enlarge, while the nodes on the left side (orchidectomy) remain fine. In the last year or so the nodes have also swollen on several occasions, probably fighting local infections, but they're very hard and immobile which is concerning.

While I've put this down to scar tissue up to now, I'm now beginning to think that the nodes are not so benign. Over the past couple of months I've been experiencing ever more severe night sweats. It started with the back of my head (soaking pillowcase) and the backs of my legs sweating upon waking every other night. However, over the past few weeks I'm getting whole body sweats nearly every night and my wife is almost in disbelief how soaked the bed is in the morning.

Does anyone have any advice, expertise, or experience with the likelihood of new primaries or relapses so long after the initial disease? Any input, thoughts or guidance would be gratefully received.

Best wishes.

Craig     

  • FormerMember
    FormerMember

    Hi Craig

    Go see a doctor and have them run some tests, blood work, ultra sound of the other testicle, CT/MRI, maybe a testosterone test.

    Before AND after my orchiectomy i would drench the bed in sweat. Mostly from all the stress and possible hormone imabalace. I had a stage 1 seminoma.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi db79

    Thanks for the reply. Yeah, I had night sweats after my orchidectomy and eventually (2-years later) I started 'testosterone replacement therapy'. I've been on an injection of Sustanon 250mg every two weeks for 17 or 18 years without any incidence of sweating until the last few months. So, while hormone issues are a possibility I believe it is not likely to be connected to testosterone deficiency per se.

    That said, I wholly agree that I ought to seek the advice of a doctor at this point and hopefully get the scans and bloodwork you recommend. Did you get your own testosterone checked, and if it was low <12nmols/L did you receive therapy for primary hypogonadism?

    Relapses are almost unheard of in the opposite inguinal nodes of early seminoma patients, but it has occurred in men who have orchidectomy and additional surgery in the groin area (either side) to TC - which is applicable to me. I also know that the incidence of other primary malignancies is raised in men who received radiation as a follow-up treatment: leukaemias, bone cancer and lymphomas are all risk factors in the decades after treatment; this is why I'm concerned. I also ask myself how prudent it was to opt for radiotherapy given most oncologists and experts now advise against it.

    Again, many thanks for your reply db79. I hope you're over your own cancer experience and living a happy and healthy life. Even under lockdown.

    Best wishes.
    Craig    

  • FormerMember
    FormerMember in reply to FormerMember

    I did request a testasterone test shortly after my orchiectomy and it was very low but still within normal range. I did not go on therapy for it and I think it has probably improved since then I was under alot of stress. I had a really hard time with having a choice in adjuvant treatment.

    Im still stressed now its been only 8 months since my orchiecomy plus to add to my list I had broken my clavicle in a car crash two months ago and now I probably need surgery because it didnt heal right on its own. But I guess Im not quite as stressed now since im not drenched in sweat anymore. 

    Make sure to check the other guy too considering that is the most common second cancer for TC survivors.

    Good luck with everything and God Bless!

  • It could be some virus. But go and see the doctor anyway.