I know I said I wouldn’t do this but I can’t help it. For anyone who hasn’t followed my recent posts, I’ve been having a heavy dragging feeling in my remaining testicle and up into my groin, a dull ache and some pain. I went to see my oncologist who referred me for an ultrasound. I have a scan booked for the 8th of October. I’ve had bloods done and my tumor markers have come back normal. I should be happier about this but I still have this little voice in the back of my mind saying Your not out of the woods just yet. Last time I had Pure Seminoma and it was Nearly 9cm wide before my bloods elevated. Even then they only elevated slightly. I’m still worried and wanted to know if anyone has had normal bloods but still had cancer. 4 months prior to my last diagnosis I had all these symptoms which were dismissed by a doctor at a hospital I went to. Saying it was a groin strain. Obviously if anything is going on it will be very very early Stages. I’ve looked at it again today and it feels harder to me. I hope someone can reply.
Aw Tony. The waiting is without doubt the worst part and I can only say that from a “partner of patient” point of view so know I can’t really understand what you are going through.
My husband paid for a private ultrasound as he didn’t want to wait for an apt date. From memory this was about £250/£300. But if you have an apt on 8th October and they got you in a few days earlier it is probably not worth it.
So, 8/9 days to wait. One day at a time. Try not to google/ analyse/ predict. You can only do that by keeping busy. Have a plan for each of the next 8 days that mean your mind wins and this dreadful peace stealing illness does not!
We are with you. And ( as I always offer unless people would rather I didn’t) happy to pray for that peace.
When I was waiting for my husband’s CT results last Dec I remember one day thinking I absolutely cannot get to that date. I can’t wait! I was so anxious! I was googling to distraction. But then I remembered to just pray and that burden lifted the next day. In truth it never returned. Not even when my husband’s diagnosis was bumped from Stage 1 ( probably just surveillance ) to spread via blood to the lung ( and four cycles of chemo). I am truly not trying to convert or bible bash you. I just hate that you are dealing with such uncertainty and want you to have that peace and ability to live in only today.
As I said, I am not the person who has suffered with this illness and could never full understand the journey you are on. Just know that although you might feel alone, us forum folks are with you, thinking about you and rooting for you on 8th.
Thank you for your words. I can get through the next 8 days. I know I can. Just had a little wobble.
Tony Soprano
Classical Seminoma, initially stage one.
Oncologist initially unclear if elevated lymph node is due to cancer. bumped up to stage two B after CT scan 3 months later. Further spread to 2 lymph nodes and increase in size.
Undergone 3 cycles of BEP at Derby Teaching Hospital and had the all clear on 9/2/17
Now on ten years of surveillance
Hi Tony,
Unfortunately you are now part of the waiting game, which might be worse because its a game you have played before, and you have had both negative and positive outcomes from. Nothing I can say is going to put your mind at rest until you have the ultrasound, and you may then have to wait until a follow up appointment, though my experience of ultrasounds is I knew the result at the time as the ultrasound operator shared their view of the results. First time "its a tumour" and second time "its clear".
I know from my own experience I spent hours trying to put the jigsaw pieces together in my head, despite not having all the pieces. One minute I'd have it clear in my head, its cancer I have cancer, within 10 minutes I've managed to switch in my head, and convince myself everything is fine. The mental side of this journey is usually the hardest part of this journey, and for that we have to be grateful, as others with different forms of cancer that do not have such a good prognosis have to go through all the same mental struggles of uncertainty and waiting times, but with out such optimism if the news is not want they want to hear.
No matter the outcome you have, you will have a journey to take, but very very likely you will be here to assist others in the future with "The Waiting Game", something I have already seen you do, offering coping mechanisms to deal with the waiting, keep busy.
For the record, I was MGC and my bloods were originally normal, upon relapse they were not normal.
Its easy said, but you can not solve this riddle before the 8th October. You will try, but will not be able to. The 8th October is next Tuesday, only one more weekend to get through, and it will be the next day after Monday you get news.
A quick search for Tony Soprano quotes bought this beauty up - "I wipe my ass with your feelings." Not sure its relevant but it made me smile!
Take care
Dan
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007