Fatigue one year after diagnosis

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Hi everyone,

I was diagnosed with a PT1, 3.6cm classical seminoma, confined to testicle, no retis invasion etc, at the start of December 2024, further to an orchiectomy of my leftie. No raised blood markers, initial clear CT scan at the time and the oncologist has recommended surveillance only.

I've not had any adjuvant chemo and MRI / CT scans I've had since have been clear, as have the quarterly blood tests.

I went back to work a couple months after the diagnosis but 6 months later I have now had to sign off work with significant fatigue and currently I struggle to do daily tasks without feeling tired.

The oncologist doesn't think it's anything sinister and am awaiting more blood test results as of last week (querying low testosterone etc, altho hair growth etc is ok).

Has anyone else with a similar diagnosis also had such fatigue? 

Wishing everyone the best possible health and outcomes,

DS

  • Hi  . Sorry to hear you are suffering the effects of fatigue. I'm not from this group so just giving your post a bump as it seems to have slipped through. I have suffered with extreme fatigue from my own chemo/radio treatments and know how debilitating it can be. It did gradually get better. I hope your blood tests can give some answers. Hopefully someone who has had the same treatment as you will be along with some advice. Best wishes.

    Best wishes to All,   rily.

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  • Many thanks Rily - yes, here's hoping! Wishing you the best in your own journey and recovery too.

  • Have you started any other medication?  A while after my treatment I started taking bog-standard ace inhibitors for high blood pressure.  At the same time I started feeling all of the psychological symptoms of low testosterone, but my blood tests were showing my testosterone levels to be fine.  Multiple trips to my GP were no help.  I finally went private and saw a endocrinologist.  He immediately confirmed it wasn't a hormone issue, but he spent time going right through my medical history.  When I told him I was on blood pressure medication he looked up the rare side effects and read back to me everything I was experiencing,  Stopped the meds and two weeks later I was fine.  After one medical episode, especially something as serious as cancer, it is natural wonder if your next problem is linked - but it might not be.

  • Sounds like low testosterone I had really bad fatigue after my surgery and I produced little to no testosterone as I was bilateral but since being on TRT I have been a new man but still get fatigue when I am needing another depo injection 

  • Hi. I had surgery on my leftie start of 2022. I had a similar diagnosis. Different cancer cell type but no chemo just surgery and then surveillance. I experienced similar drop in energy levels had requested testosterone checks but everything came back ok. I don't know if my new testosterone levels were lower than before surgery but doctors said it was within the correct measures. I'm sure now if I've just got used to the new normal or if things sorted themselves out but I don't feel bad in my daily life anymore. Continue to be active and get on with things. I think it justes time for your body to adjust to everything. Few years in now and I've forgotten what it was like before surgery. Life feels normal. Body feels normal, bar from chronic epyditimitus. That's a shit. Got infection after surgery and now I've got swollen tubes for life supposedly. Pain comes and goes. Could be worse though, could have not noticed and no been here

    Hope you get everything sorted soon and live a happy life mate

    Andrew

  • Hi everyone 

    Thanks so much for sharing your experiences - makes me not feel so alone in this.

    My bloods etc have come back ok - so it may be more mental than anything. Keeping a watching brief on it.

    In any case, wishing everyone the very best of health on their own journeys, and I hope folks have a restful holiday season when it arrives.

    G.