Hi everyone,
It’s been a whirlwind few months, but about 2 months ago I went for an orchiectomy and the results have come back as stage 1 cancer. They’re confident it hasn’t spread and it was contained, but I have an appointment with oncology later this month. I’ve been told by the Oncology nurse that she would expect me to be out in surveillance rather than given chemotherapy but that the consultant will take me through the steps. Does anyone know whether they give you a choice of chemo or surveillance and had anyone any advice if I am given an option?
Also, they have spotted calcification on my other testicle and so they are having a multi-disciplinary meeting to discuss next steps for this. I’ve been told they would prefer not to remove this one, but that it is an option. Has anyone had a bilateral orchiectomy and have you any advice on how successful testosterone replacement therapy is? I’m worried about the impact on weight, fatigue, brain fog, depression and sex life!
Any advice would be great!
Hi Rob. Hope you are feeling ok and beating up?
I was in pretty much the same situation aa you. Stage 1 and calcification noted on my remaining nadger.
The calcification was pretty much ignored as standard as far as I’m aware. I don’t think there is anyway they would remove it for that. That sounds like a torture method! Or removing someone’s someone’s lung because they’ve just started smoking. Ok, I’m exaggerating but you get my point. Ultimately you are in good hands now and in a month or two you’ll be feeling great with a new lease on life!
My oncologist didn’t really offer a choice between chemo or surveillance as I wanted the chemo. Have a read through my previous posts. I pretty much demanded it, but that was my choice. You need to make your own. I felt the oncology team were great. Although I requested it they made me feel at ease that I had made the right decision. No pressure. I liked the odds. Chemo around 97% chance of being cancer free in 5 years compared with 75% with surveillance.
Any questions just ask. Good luck!
Hey there—so sorry to hear you're going through this. It's not a fun club to join by any standard, but I hope you're still feeling positive about getting back to normal life in the coming months.
As for a bilateral orchidectomy—we have a neighbour who has testicular cancer on two separate occasions and thus had both testicles removed. He still feeds his cows every morning and seems to have a very ordinary life with his family. I can't speak much about the specifics and personal issues I'm sure he's had, but he still works, has a reasonably active lifestyle and hasn't put on any noticeable weight.
That being said, if the other testicle just has a calcification, I would wait to see what your doctors actually decide upon. My husband had a calcification on his remaining testicle, and they gave him an ultrasound 4 months later, and then another 6 months after that, just to be sure it hadn't grown or started to cause issues. Calcifications seem to be reasonably common, so fingers crossed your doctors decide it's harmless.
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