Hello

Hi StClares and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I don't have the experience you're looking for, as I had a different type of cancer, but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list where it'll be easier to spot.

While you're waiting for replies, it would be great if you could pop something about about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

Dear StClares 

I hope you’re doing ok, I’m really sorry to hear about your histology results, please do update us on the course of treatment you’re having. I assume you were given FLOT prior to surgery? Or some neoadjuvant treatment? It’s my understanding for stomach cancer they give half treatment prior to surgery and half afterwards in which case you may be advised to have 4 cycles of FLOT or some other chemo such as CAPOX + immunotherapy, so you may get that alongside some other treatment l, but i hope your oncologist explains everything to you. My mum has just had a TG and she is getting used to everything so far. Just eating a little as often as she can mostly soft foods. I think we’re hoping to build up to solid foods soon again but it’s at the discretion of your surgeon. We’re waiting on histology but best of luck to you for your appointment with your oncologist. 

Thank you Nnnnn  - it’s a comfort to hear about other people’s experiences.   No I’ve had no neoadjuvant treatment, only surgery.   I’ll be be asking a lot of questions at my oncology appointment.   I think they were in a hurry to remove the tumour.   It’s helpful to know about your mums treatment.  I’ve progressed beyond the puréed and soft food stages but still have to experiment carefully.  I’ve had problems at the other end!   I think loperamide helps, just one if needed.   And I’ve learned to go very slowly and have very small portions.  I hope your mums path lab results are good.  Please give her my best and I’ll compare chemo notes.

all the best to you both

Thank you very much for your reply, it is good you’re on solids now! I think that for my mum it has been quite variable, either constipation or diarrhoea but very uncomfortable either way- I suppose it makes sense for it to be like that but I know it’s not nice for anyone! I hope it all settles quick for you, from reading the forum I think people find out what works for them and then they can go about as normal without having to worry about these issues after a few months to a year, fingers crossed that happens for you!

Any questions you have about the chemo regime re side effects or anything I think this forum can be quite helpful. 

If you have any questions following about treatment or side effects I’d be happy to answer but I wish you the very best of luck and sending you lots of love your way. Take care xx