Husband diagnosed with stomach cancer February 2023

Hi so sorry to hear of your husband’s diagnosis… you’ve come to the right place to have a chat… when you are ready to ask questions, hopefully someone here can give you the answers… 

I was diagnosed in November 2021 with stage 4 signet ring and had my stomach removed a year ago… I had 8 rounds of chemotherapy in total called FLOT… touch wood I’ve been ok and I am getting my life back to normal…

Take care 

Michele 

Thank you for your support and thank you for sharing! So very comforting to hear your story - I wish you all the best.

Ahhh, so sorry you find your self here Carate I know only to well what it feels like not knowing much at all and everything seems to take time. My husband had his stomach out in Jan and he’s doing absolutely fine at the moment. 
As Vespa says when you’re ready to ask us a question I’m sure someone will be around to help you.   Hope you get to know something soon xx

Hi

Welcome to our group!  This must be such an uncertain time for you!  The only good thing is you have access to different medical opinions in different countries! But that brings its own challenges.

I have heard of others in this group who have travelled abroad for treatment not available in the UK.  
I think it’s more difficult to get a second opinion here!

Chemo can be very effective and immunotherapy is such a breakthrough in cancer treatment!  
I do hope that you get good news and that surgery becomes an option!

Do use this group for support, there are lovely people who understand and can support you!

1. Hi im 62 and had stomach cancer i had 4 x FLOT which reduced the tumour surgery 4 months ago TOTAL GASTRECTOMY and another 4 x FLOT the cancer has been eradicated although im having to educate myself to eat less and more often to compensate. Try to get a true picture from your oncologist and a plan in place for treatment.  Good luck

On Thursday we had an appointment with the oncologist to hear more about how many rounds of treatment and when to expect a scan. The cancer is stage 4 and has spread to the peritoneum. They are planning for 6 rounds of treatment, then a scan and depending on the result maybe an operation. My husband is experiencing very few side effects, is eating much better and his mood has improved tremendously, which is all good, of course, but also has caused me to forget that we don’t know until the scan IF the cancer is responding to the treatment!

I am feeling so depressed and lonely - I know I should try to stay positive, but I am so scared!Reading all your stories here, and all your kind support and encouraging words to me and everybody else, made me hopeful that we will manage to beat the cancer, but right now I dare not hope! How does anybody manage to cope with all this uncertainty?

My husband’s heart is stressed by the 5fluorouracile, so next time they will give him another drug, just as efficient, which might cause diarrea. Hopefully he will not be too affected, but after 3 rounds of chemo/immune-therapy we were starting to feel that we knew what to expect. Now it is back to starting point. And we don’t know if it will help!

So again no question - only the big ones - how do you all manage? How do you manage to stay positive? How do you manage to offer support and encouragement to other people? How do you manage all the waiting? How do you manage all the uncertainty?

Morning My husband too has had total gastrectomy and begins final chemo on Tuesday. Hes very low mentally as hes so used to being busy all day but is constantly tired (to be expected) I was wondering if you could give me any advice re his diet Did you find a good book to help you? We actually live in France and my language skills are not brilliant and although we see a nutritionist they dont seem to offer any practical ideas? At the moment hes being fed at night from a feeding tube Oh and he enjoys Jelly !! when I can find it in the supermarket!!! Bonne chance (Good luck) for continued recovery