Just received my diagnosis today.

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Hi there, my name is Phill, 54 y.o. male. Here is my tale.

One evening felt slightly less than 100%, a rarity for me. I didn't fancy my evening meal, even more rare! Didn't think too much of it, went to bed, woke up in the night with my stomach feeling a little off.

The following morning I got up, had my coffee, went to the toilet, as is my routine and was shocked to see the colour black in the toilet. After 3 more bouts of melaena (I believe that's the technical term) before midday I thought I'd better try and contact my GP. I got my GP to call me and she told me to go to my nearest a&e, they kept me in overnight and arranged for me to have an appointment for a gastrocopy.

I had the gastrocopy with both the throat spray and sedation. I was watching the monitor and saw something odd looking that biopsies were taken from that looked to be oozing a little blood, I guess I assumed it was an ulcer or polyp.

I was left to recover from the sedation and my wife was phoned to come and fetch me. When she arrived we were both taken to a room to be given the result of the gastrocopy. The doctor entered and told us she had found a malignant looking tumour in the top of my stomach, we were both shell-shocked at this news. 

Last Thursday I went for a CT TAP scan with contrast and today had an appointment to see an upper gi nurse specialist. The nurse broke the news that the tumour is cancerous. She said the CT appeared to show the cancer hadn't spread and the lymph nodes didn't appear enlarged.

The next step for me is a staging laparoscopy, within the next couple of weeks. 

Strangely I haven't felt particularly worried about the cancer itself and it's potential effect on my life, at the moment I'm more worried about the financial implications that an extended period off work will bring.

Anyway, that's my cancer story so far, catch you later,

Phill.

  • Hi Phill

    I'm sorry to hear of yoir diagnosis. Good luck with your treatment and praying for a speedy recovery.

  • Hi Phill and a very warm welcome to the online community

    I'm not a member of this group, as I had a different type of cancer, but thanks very much for taking the time to share your experiences with everyone. I'm sure others who are just starting out on their 'journey' will find this very helpful.

    The last thing you want to have to worry about when you're concentrating on treatment and recovery is potential financial implications. You might like to take a look through this information from Macmillan on money, finance and insurance. You can also speak to specialist advisors on such things as welfare rights, financial guidance, work support, etc on the Macmillan Support Line. It's free to call them on 0808 808 0000 and they're generally available Monday to Friday between 8am and 6pm.

    When you have a minute it would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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  • Phil

    Sorry to hear about your diagnosis but good you have found this group.   Like you the diagnosis of stomach cancer as I had some vague symptoms which were checked as a precaution. I had Stage 1 stomach cancer which was successfully treated three years ago.

    If it helps I wrote a Blog which you can read if you click on my name.

    I am happy to provide any advice if it helps.  I was back at work six weeks after surgery and although I had chemo before surgery I did not have chemo after surgery.  I now need a normal life - eating and drinking as before!  Although smaller and amounts!

    Good luck!

    Jac

    Life is what happens when you are making other plans!  
     
     
  • Hi Kate, thank you for your kind words!

  • Hello latchbrook,  thanks for the advice! I will definitely be contacting Macmillan for some financial/ welfare advice as prior to this I've never had the need to have any sick leave in the last 30 odd years.

    I have a look at sorting out my profile too.

  • Hi Jac, thanks for the msg and for the offer of advice. 

    They have provisionally called mine a T2 N0 M0 after the CT scan, and said they'll have a better idea when they do the laparoscopy. I've got a preop on Wednesday so hopefully the laparoscopy won't be too long after that.

    I'm just really glad I acted on the symptoms rather than brushing them off and leaving it a couple of days to see if things settled down (which they did). I shudder at this thought because I'd still be unaware now.

    I'll definitely read your blog, give me an idea of what lies ahead.

    All the best,

    Phill.

  • Good luck!  Once you have the laparoscopy there will be an Multidisciplinary Team  Meeting to decide on treatment.  I found the waiting the worst part! Once you know what you are dealing with it is easier.  I used the time to prepare as best I could, went out walking- the gym was not an option for me but I tried to get as fit as I could.  I also ate high protein food to build myself up and put on weight!  I had lost weight because I wasn't eating and I knew I would lose more through the chemo. 
    I also focused on all the positive stories that I read on this site!  
    Take care!

    Jac

    Life is what happens when you are making other plans!  
     
     
  • Hi Jac,

    Thanks for the advice!

    I've got an active job and like going for walks with my dogs, so that bit is covered. It also makes sense trying to put a little weight on prior to treatment commencing so I'll definitely enjoy that bit!

    Friends, family and colleagues are all helping me keep positive and I take inspiration from the positive stories on here and elsewhere.

    I've got the laparoscopy scheduled for Tuesday.

    In your opinion, how long should I take off work for recovery from it? I've not really been given any info in regard to this from the hospital. Work have been really supportive so I'd really like to give them an idea how long I'm likely to be off so they can arrange cover.

    Regards,

    Phill.

  • Hi Phil

    I worked from home for a week after the laparoscopy.  I was home from hospital that night but I was a bit sore for a few days and tired.  So probably three or four days it’s emotional as well as physical.  

     I got good advice from the Oesophageal Patient Association when I was first diagnosed 

    https://opa.org.uk/

    They have leaflets which were helpful.  

    We have just been out for a meal with friends and I ate and drank as before my operation - I would not have believed that would be possible three years ago!

    You will get through this!

    Good luck on Tuesday! The next stage in the process!

    Jac

    Life is what happens when you are making other plans!