Vomiting/Motility/Post Surgery Issues

  • 3 replies
  • 22 subscribers
  • 333 views

Hi

Husband has 4 FLOT, TG, then another 4 FLOT 2.5 years ago after being diagnosed stage 3 stomach carcinoma.  Returned to very normal life very quickly, highly unusual but he considered himself very lucky.  Things have changed drastically in the past 9 months.  Lots of bile reflux and vomiting episodes mainly bile, he is struggling to keep fluids or solids down.  Multiple scopes have identified a blockage, biopsies taken from inside reconstructed bowel show no signs of dysplasia or malignancy, multiple CT’s show no sign of recurrence, PET CT shows no sign of malignancy or disease either.  Endoscopiees can only get so far down because of the blockage and the surgeon won’t give an answer on what it is that’s causing this or how it can be fixed.  The sickness can last for hours at a time.  Has anybody else experienced anything like this and if so what was the outcome?

  • I’m so sorry to hear about this setback for your husband. It might be worth trying to get a second opinion. Are you near London? There are some excellent specialists there that you can go to. 
    You’re entitled to ask for a second opinion though often people are reluctant to do that.  
    I know that others on this group have done this and it clarified the diagnosis and the treatment. 
    Hope things get easier as it must be very distressing for you both! X

    Jac

    Life is what happens when you are making other plans!  
     
     
  • Thank you for your reply and kind words.  Unfortunately we are based in central Scotland and although his team have been great, we are now at the end of the rope with everything and how slowly it is moving.  We are open to second opinions now though as my husband has literally no quality of life at the moment.  He is unable to even walk to the shop because he is so weak from being unable to eat of drink.  The effects of this both physically and mentally are absolute torture.  Surely he can’t be the only person for this to have happened to following this type of surgery and treatment.x

  • My husband went through period when he was nauseated and retching 24/7, went on for weeks, he was impatient at time and they had talked about discharge home with syringe driver from palliative team (even tho he wasn’t palliative) for anti sickness meds (he refused as he associated driver with his mothers final days) 

    anyway, they stretched his oesophagus and although he had an unrelated heart /oxygen complication after that and ended up back in icu - when he eventually came round he was sooooo much better.  

    Nausea is horrendous, he had zero quality of life at that stage and almost daily talked about euthanasia. 

    May be worth asking if a stretch is an option.

    take care

    laura