ESD Has Not Been Curative

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Good Morning, 

I received a call from my consultant with the pathology results yesterday. Its not good news.

I have been told that cancer cells have been found in the blood supply of the good tissue, of the tumour when it was removed. Its called lymphovascular invasion. It has been recommended I have a full gastrectomy.

I dont know what to do with this information. Factually, I understand. Emotionally, I am spiralling. I want to scream, run away! Im confused overwhelmed and cant get to grips with what I have just been told. Im devestated and shocked. It was found early, this shouldnt be happening.

Can anyone please share any information or experiences with me? I want the nitty gritty, the pain, the struggle and the final outcome. I am so overwhelmed. I don't know what to expect.

I would be grateful for any help or advice.

Thank you so much

  • I’m so sorry you are going through this.  I think many on this forum will identify with feelings of spiralling emotionally and thoughts completely running away.  It’s positive that you write it’s been caught early.  Everyone will have their own journey and experience and I expect yours will be unique to you.  But please try to hold that there is definitely life after stomach cancer and full gastrectomy.  
    My husband was diagnosed last Aug and his journey featured what we have been told as spectacular number of complications-  a shortened version is on my profile if you wish to read. But most of the other patients I spoke to while he was in hospital after total or partial gastrectomy had relatively quick recovery. 
    My understanding of LVI (I’m not medic at all but this last year has been a steep learning curve) is that it’s not yet reached the lymph nodes (but on its way there) so hopefully they’ll be able to treat this.  
    Are you scheduled for chemo before surgery? 
    Be kind to yourself, eat all your favourite meals if you can now and maybe try to spoil yourself before treatment starts.  Yes you have a rough ride approaching but plenty here have the view that life can be good after.

    Take care 

    Laura

  • Thank you, Laura. You are right the cells are in the blood vessels and will spread. The stomach and surrounding lymph nodes will be removed.

    I am so glad to hear your husband is doing well. This is just so raw, Im still trying to wrap my head around it.

    Is your husband able to have all foods now?

    I am making a point of eating extra now, with ice cream being my go too!!

  • He can have most foods, smaller portions than before but has even been able to have bits of steak.  He tends not to have breads but there’s nothing that he can’t have from a post- gastrectomy position, he’s just had to adjust and some things he recognises no longer agree with him so he avoids.  But he is back to enjoying food and can manage the odd pint now too! 
    Enjoy all the ice cream! It will be an easy post surgery food anyway! 

  • Just read your profile Laura, what a journey you’re husbands been on and you come to that. Im so pleased things seem to be going in the right direction at last. Xx

    Sue Xx
  • My word, your husband has been on a long journey to get to this point. 

    I hope he continues to improve and become stronger daily.

  • They removed the cancer tumour June 24. No chemo, because there is no cancer at the moment. The microscopic cancer cells are in the blood vessels of the stomach. If left, these cancer cells can spread further into the stomach, lymph nodes.