Cancer has spread

Thank you,

I'm not doing too bad so far so fingers crossed it stays this way.

Hi, really sorry to read this. I am here because my wife 43 ( 4 children) youngest 6 months old has been diagnosed with same thing. Her CT scan showed no malignancy but mular thickening of stomach wall, near Pylorus. She has a staging aLaproscopy this week. I am dreading this. Any information will be appreciated. 

This is where my tumour is, I am waiting to see the oncologist next week, they are planning chemo then surgery, I am keeping my fingers crossed for you that the cancer is contained in the stomach and remains curable, they told me that the staging laparoscopy will check to see if there’s any cancer cells outside of the stomach wall, sending best wishes to you all 

So very sorry for you. Yes I found it hard telling our son. 
I had surgery in November they removed 2/3 of my stomach, it went well & I have recovered well. Unfortunately not all the cancer was caught, 4 more chemos. Future unknown! 

I had a laparoscopy and Pet scan. Fortunately they were both clear. Hopefully it’s contained in the stomach. I have had chemo & surgery, now having more chemo as they did not remove all the cancer. Hope it goes well.

Just a quick update. 

I had my second palliative chemo yesterday & all went well apart from feeling a bit ill towards the end of the infusion and I feel very tired.

I did however have my oncology appointment brought forward as I have been getting strange pains in my side but the oncologist thinks it could be scar tissue stretching after the surgery but is arranging a scan but I'm not sure when that will be.

However I mentioned that he brought up the possibility of immunotherapy when I saw him last and that they were just waiting on all my markers and biopsies coming back that were taken during surgery.

He had obviously forgotten and checked on his computer but said "oh I've not had that report yet so I'll chase it".

I'm so annoyed that once again I'm the one having to chase things and I'm treated like an after thought.

This is treatment that affects my life for goodness sake.

Sorry to be so negative but I feel let down once again.

Hi, sorry to hear this. My wife has the cancer exactly at the same place. Did they do Laproscopy and CT before they started FLOT?

Glad to hear you're doing okay Positivenelly , and hope you're resting up and keeping warm. Mum also experiences what we've now come to call down days the day the infusion finishes, which lasts a couple of days. She tends to feel fatigue and fogginess. I've read quite a bit about how best to manage it, but it varies greatly.

Im sorry to hear though that your doctor hasn't been able to provide you with more info on immunotherapy as an option. And good on you for mentioning it. Hoping that you get some answers soon. I've realised that just having a space to share your feelings, worries etc is incredibly important so please don't apologise. 

I had Laparoscopy then FLOT then CT.

Thank you so much.

I've been in touch with the upper GI nurse who is going to speak to my Oncologist and chase everything up.

I now have to decide if I want to change to a different Oncologist as I've definitely lost confidence in my current one.

I'll see what he says to the GI nurse and make a decision after that.

So far I'm doing ok after my second chemo on Tuesday and was able to get out into the Lake District yesterday with a couple of my colleagues. 

Honestly although I live near the Lake District the scenery leaves me in awe every time.

Yesterday was particularly beautiful with snow capped mountains, blue sunny skies and crystal clear reflections on the lake.

We stopped at a cosy pub for some food.

I really needed that and I'm back to feeling a little more positive today (although still annoyed).