Husband 31 - battle with Stomach cancer

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Hi everyone, really here for some mental support and to talk to others in the same position or with more knowledge

My husband is 31 years old and was diagnosed with stomach cancer in June 2022, the tumour was at the bottom of his esophagus. The original plan was 4 rounds of FLOT followed by surgery to remove the whole stomach and the another 4 rounds of FLOT.

The chemo didn't go to plan becuase he had bells palsy so he only got 3 rounds, the surgery didn't go to plan becuase the cancer was higher up the esophagus then the scans shown, so they had to do a more complicated surgery.

We had the appointment with the surgeon and he told us that the lymph noyes were clear however there is microscopic cells in the margins. 

The surgeon give us a real sense of hopelessness and he said the cancer was incurable and my husband maybe has 12 months to live. I've never felt pain or heartbreak like that, we have only celebrated our first wedding anniversary and never would I have expected our first year as Mrs and Mr to be like this. 

After this meeting we went to Maggies and 2 former oncologist said that they were shocked the surgeon said that becuase we haven't been given any options yet, when my husband asked the oncologist nurse at the appointment if he should be making arrangements, she replied no no were not there yet.

I've never felt more confused before, 1 meeting left us feeling like this was his last Christmas and then the other give us hope. We have his appointment with his oncologist on Wednesday and I just cant stop thinking and over thinking and living in a state of fear.

Any advice would be so helpful

  • I am really sorry to hear about your husband and I would definitely seek a second opinion!  There must be treatment options that can be explored?   There should be a Multi Disciplinary Team meeting to discuss your husband’s case and you should ask what the outcome was?  I am not sure where you live but you can find out if there’s another hospital which could review your husband’s case.  He is very young so there must be some treatments which could be explored.

    Good luck!

    Jac

    Life is what happens when you are making other plans!  
     
     
  • Hi there 

    I agree you need a second opinion. My mum had a similar cancer and we sought a second opinion from Nick Maynard at Nuffield Health in Oxford. He is a surgeon specialising in gastro/oesophageal cancers. He was extremely efficient and his secretary set up the meeting very quickly. You can find him from a quick Google search. 

    I don’t think you should be feeling this confused - you should also have a clinical nurse specialist assigned who can give you a steer on what’s happening and timescales etc? 

    Wishing you the best of luck. 

    Emma