No Treatment

Ho Montynoonoo and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I don't have the experience you're looking for but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list where it'll be more easily spotted.

While you're waiting for replies it would be great if you could pop something about about your mum's diagnosis into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

Your mum should have been assigned a cancer nurse specialist, sometimes also known as a key worker. It sounds like it might be an idea for her to give her CNS a call tomorrow to ask for clarification as to why she isn't considered suitable for treatment.

x

First of all, I am so sorry to hear about your mum. I lost my dad to Pancreatic Cancer two years ago. HE was 80 years old. He proved them wrong, they said he would not make it to his birthday, and he did and lasted three weeks after his birthday. He was not offered treatment either. They said it was because of his age, and that they would keep him as comfortable as possible until he passes. I had a major operation to remove a tumour at the junction of stomach, The Consultant told me, "You are still young, if you were older, we would not consider offering you this operation". I am still trying to recover from it. I told my family, do not worry about me, go on with your lives as if nothing  was wrong with me. We take each day as it comes, and look to the good things and not the sad things. 

Thank you for your reply and for suggestions regarding updating my profile, which I have now done.  We have requested a meeting to discuss a meeting as to why she hasn't been suitable for treatment x

Thank you for your reply, I am so sorry to hear about your Dad and your diagnosis too. Your response is exactly the same as my Mum's which I admire.  You take care x

Hi,

 My Dad has recently been diagnosed with stomach cancer, his is stage 4 with spread to nodes. He is 81 and like your mum fit for his age, he has just been offered Capox palliative chemo which he has accepted, starts in a couple of weeks. He doesn’t have any other health issues apart from type 2 diabetes. Hope you get some answers for your Mum xx

Did they say where the Cancer is located ? I too have Type 2 Diabetes and have had it for many years. I had six Chemo sessions, a few weeks break, then the big 10.5 hour operation. Still recovering from it today. I do not remember anything for the five days after operation. Then I woke up, and was being taken to the ward. Wishing him all the very best.

Hi, his tumour is where the stomach connects to the oesophagus. They said he would be a candidate for surgery had he been younger xx

That sounds similar to mine. I was told by the GI 
Consultant, that If I had been 60+ then they would not have offered me the operation. The chemo, did not reduce the tumour size and I had six doses. Chemo -  2 week break - Chemo -  2 week break and so on. What always get me, is they say "Most patients" and I always reply, I am me, I am not most patients. I then had the operation, they did it keyhole style and not the three HUGE cuts as one guy had. I was in the ICU for 5 days, and remember nothing of those 5 days. I was allowed home after 10 days. The consultant surgeon asked me to give him a good reason not to allow me home. I replied, I can give you a 100 more as to why you should allow me home. After two points, he said okay. I would ask for the operation, as long as organs are fine, and lungs are strong, he will stroll the operation. It is just the after effects, NO stomach, every thing you eat has to be blended down to mushy almost liquid, and only a fist size portion at that. I still have PEG, (JEJ) feeder I run every night for 12 hours for protein and whatever else is in the feed. I had three of six more Chemo after op, could not do the final three, it had taken everything out of me, but as a fighter, I kept on going. I eat only fresh vegetables and some spices.  Cannot handle Vindaloo any more, that burns all the way. Nice taste though., So tell them you know an OLD man who had the op and doing great. Right to life, and they are abliged to do everything they can for you. XX

Noob1, I'm so disturbed to hear that your GI consultant has a hard and fast age policy of 60 years old. My father had his TG aged 71 and is thriving and free of disease - he can even do multi-course tasting menus now, without a stomach aged 75. I know several - many - people who have had TGs in their 70s and have done very well.

Please may I add and message you?

SDH x

Yes indeed you may add me and message me.