Can anyone advise me if and where they can get this cream from please. My husband got his private prescription for it today and no chemist or hospital pharmacy can obtain it. They all say there is a problem and suppliers cannot obtain it. This seems strange as it is often talked about on this forum that people are using it, but we can't obtain it. Many thanks everyone x
Hi harlyn. I had a problem getting it and I had to go round different pharmacies.... it's very frustrating when it's something that you really need... I had to keep ringing them up and going in... I eventually rang the consultants secretary and managed to get some at a chemist that had just got a supply.... it may be a case of keeping on at the pharmacies on a day to day basis I'm afraid
Or the consultant might decide to prescribe another cream which does the same thing....
Hi Harlyn I got some about 3 weeks ago - I always find Boots well stocked and very helpful. Plus they answer the phone ! Good luck with your search xx
No we havent. Roger still waiting for reply from Consultants Secretary as to what we should do. Tried all chemists within a 6 mile radius. Boots told us not available in their warehouse (which is 5 miles from our house) so she said will affect all Boots stores once their stock has gone. As soon as you mention the word they immediately say no hope !!! One chemist never answers the phone so not sure on that one. It isnt good is it as it is prescribed such a lot.
Hi Rondo and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
The best way to find others who may have had photodynamic therapy is to join the forum and then start your own post.
It would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any problems joining the forum or starting a post, just reply to me and I'll be happy to help.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007