Bcc on nose, treatment options

Hi, 

am sorry to hear what your going through, it’s really difficult to give advice as not expert, and they have different opinions, I too have a Bcc on my nose it is on the tip and side and going down the septum.

I also believe I’ve had mine a long time, I had x2 punch biopsy in May by a dermatologist came back infiltrating bcc, then seen plastic surgeon who referred me to a MOHs surgeon, there was a mix up with referral, I was waiting weeks to only find the referral had not been done, so delayed seeing MOHs surgeon, so I paid privately to see him promptly. MOHs surgery is I believe 99% accurate in removing the bcc. They take layer by layer till you are cancer free under local.

i am booked in for the 1st of October, after the MOHs I am having a forehead flap, that will be done the next day, then I will have cartilage put in if needed , then after another few weeks a reconstruction. Ask about MOHs it is quite specialised, I am traveling about 45mins as my local hospital don’t do it. 

I am very nervous and worried but I believe it will be best outcome for me and if you look through older posts in here there are lots of people had it done with good outcomes. 

Good luck

regards Frankie 1

I know this is slow, but just catching up a bit. I too have an infiltrating morpheoic basal cell, a rather large one too. It makes me nervous as can be, but after some research and medical advise, moh's surgery is the gold standard for dealing with it.

And to be truthful, as ugly as it looks in recovery, I see amazing results after things have healed and been given time to settle. And Moh's is by far the best way to get it all the first time around, as unpleasant as it might be.

Awaiting scheduling my own at this point. 

Hi Frankie

thanks for your reply, lots of other stuff going on so I can’t believe it’s taken me 2 weeks to say that!

good luck for October!

i guess I just have to wait and see what they say on Monday. I was so prepared to have MOHs and reconstruction that am thrown by the idea of radiotherapy.

Hi MNJim,

i think that was my feeling too- that MOHs is gold standard/the best way to get it all so why are they recommending radiotherapy? Not much longer to wait - I’ll get my answers on Monday 

Hi, I’m new to this thread and recently diagnosed.

How have you got on and have you had your surgery/treatment yet?

I’ve been totally let down by the nhs, and after months and months of waiting to get some sort of diagnosis, I have had to go private (thankfully I had that option, or I don’t know what I would have done). I have been fobbed off by my own doctor who said not to worry, it’s not cancer etc but turns out it is and the consultant I have just seen has said that the cancer has been neglected. It is implied that it is my fault but it is not. I am so upset that I could have had treatment earlier but haven’t been taken seriously enough as it’s not ‘a priority’ - words from my own gp. 

I now have to have MOHs surgery in a couple of weeks, with reconstruction at the same time, and possibly radiotherapy as it may have spread beyond the skin into the bone. 

I am angry that I haven’t been treated properly but in the grand scheme of things it could be worse.

Just needed to vent! I’m usually quite laid back about things but I don’t want to burden my loved ones with this as I worry about how they are dealing with my diagnosis as it is. 

Thanks for reading this.

Hi 

am so sorry to hear how you’ve been treated, hopefully it hasn’t spread, I too had to pay privately  to see MOHs surgeon and I too have had it a long time, you don’t say what type of cancer? If bcc it’s so slow growing and one of the best outcome once treated, 

good luck with your surgery xx

Hi Birdwing81

dont worry about length of time of reply, am just catching up after being away for weekend, let us know how you get on, Monday, you might still have MOHs take a list with you of all your options.

Good luck xx

Hi Frankie 1

Thank you for your reply.

I still don't know what type, other than BCC or SCC. The consultant has said we will know more during and after surgery. I have had a small volcano-type thing on my nose, under my glasses for a while but have been sent away by doctors on more than one occasion. Since June, when I finally got a referral (which took about 10 weeks to come through), another much larger lesion, which seems to have completely over-taken the first bit in size and growth speed, has appeared and is now really bothering me. 

I am on one-hand absolutely fine about it but on the other hand totally terrified of what is to come. 

Have you already had your surgery? I would be interested to know if you wear glasses and if this has interfered with the surgery site?

Thanks x

Hi 

my surgery starts on 1/10/19 am looking at MOHs then forehead flap then transferred of cartilage from ear into flap then full reconstruction because mine is on tip of nose and further up, I do wear glasses but it’s not that far up on the bridge. I won’t be able to wear my glasses for a while. I was messed around in the beginning too, but although I think we all have to wait too long I think that’s just the way it is, am on count down now and dreading it but it’s not nice to look at now so I want it gone. 

Keep in touch and take care xx

Hi Frankie

Sounds like you’ve got a lot to deal with. I hope you get through it quickly and come out the other side ok. 

Mine is on the bridge of my nose so I am finding it a bit difficult and it also looks a bit yucky.

My surgery is a week after yours and it would be great to keep in touch to share experiences.

take care x