Hello, I am new to this forum but not new to skin cancer. In 2016 I had a nodular BCC removed from the tip of my nose which entailed a cut down the side and a flap. It looked awful at the time and I avoided social occasions and stayed at home until it began to heal and now it is hardly noticeable. In 2020 I had a yellow oozing appear from the scar line. It was lock down so my consultant prescribed Aldara cream for four weeks which made my nose sore and it scabbed but seemed to heal nicely again. In 2022 it started again. This time I was given a biopsy by the consultant and told it was a BCC again I was sent to the hospital to see a MOHS specialist. He said he wanted another biopsy done in the same place to see if it needed invasive surgery. This time I was told it was not nodular but a superficial BCC and I could be given a cryogenic and then the Aldara cream again for six weeks. It was so sore and painful and I felt so poorly with it but I knew I had to do it to kill the cancer. Eventually it healed leaving a dent from the two biopsies but I was assured the cancer was now gone. In November last year during a check up the consultant pointed out a small pearly lump at the side of my nose on the right cheek and sent me again for a biopsy. In February the results came back as a nodular BCC again and I would need surgery to remove it. I was so upset and was beginning to think every lump and bump that appeared on my face was going to be cancer. Eight weeks ago I received a flag shape surgery on my right cheek, this was to avoid the lower lid being pulled down by a straight scar. The surgery was fine but the eye area was very bruised and swollen for the first week to ten days, then the bruising improved leaving me with my red flag shaped scar which I know will fade eventually but at the moment it is raised and tender to touch and the under eye area is still swollen after eight weeks. The lymph nodes are not draining properly yet.
Today I received a letter from the consultant to say the histology shows it was not cancer after all but a leiomyoma which apparently is a fibroid. There was no need for surgery. I am left with facial scaring and swelling from the lymph nodes and I am devastated. How could a biopsy show a nodule BCC when it wasn’t. I now have to live with it!
Completely understand. Poor you.
My gp misdiagnosis and delay has lead me to have bigger surgery and graft instead of minor procedure. I had 2 months of trauma, pain and immobility and large scar on my forehead.
Ugh
You are not alone, lot of unknowns in this area of medicine snd poor info for patients in my experience.
Thank you. I cannot praise the hospital staff enough for the treatment I have received over the past nine years but the misdiagnosis this time has floored me. I know I just have to accept what has happened and move on for my own mental health. But it’s hard.
Yep
Agree absolutely
Psychological impact is huge and trust broken for future.
I am having some counselling with local cancer charity to help me deal with it all.
Also am thinking of setting up local support group.
Hang on in there...
Hi Genie Im so sorry to hear what you have been through.i really feel for you. It certainly makes you question things.
I hope your councelling will help, and please take a day at a time.
Take care.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007