Post CRS recovery

Just found this forum. I’m now 6 weeks post surgery and was meAnt to be returning to work next week. I left hospital after 12 days and felt fantastic. Am only walking for exercise - about 7000 steps a day. However, I wasn’t prepared for the tiredness.  I can be exhausted a couple of hours after getting out of bed. Sleep is very broken due to discomfort. I’m worried my work colleagues will think I’m taking the mickey if I have more time off. They have no idea just how major this has been for me even though I explained exactly what I was having done. I don’t want to bore them with all the post op symptoms but feel I have to justify why I feel so tired. Anyone got any recommendations?  
Thank you for any help. 

  • Hi  and a warm welcome to the Macmillan Online Community. I just dropped by and noticed you've not had a reply yet but I'm sure someone will be along soon to answer and offer advice.

    I'm sorry that you needed to find us and I am especially sorry to hear about your diagnosis but pleased to read the op went well. Well done for walking 7,000 steps a day! I think we've all been hit by unexpected exhaustion after our ops. It might be a good idea to have a word with your Line Manager or HR department to explain the situation, they should be able to "Pave the way with your colleagues" 

    Although I had a different type of cancer, any cancer diagnosis brings many questions, lots of confusion and stress but talking with other people who are on the same type of journey will help you navigate this rollercoaster.

    The Community is organised into dedicated support groups so can I see you have joined our supportive Pseudomyxoma peritonei group, this will be a good place to connect with others navigating the same type of cancer journey.

    When you have a minute, it would be great if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time. 

    It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.

    Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.

    Sending you welcoming hugs Bx


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