HIPEC

Hi LJ5

I'm sorry to hear that besides the bowel cancer recurring he's now been diagnosed with pseudomyxoma peritonei.

How did you get on searching for HIPEC treatment in the peritoneal cancer group? I've had a look in this group and there are some previous threads that mention it here as well.

It must be very hard juggling the demands of being a carer along with working and looking after your children so could I suggest that you join the carers group where, unfortunately, you'll find lots of people in the same position. However, it's a safe and supportive place to share your worries and concerns.

To join just click on the link I've created and then choose 'join this group' on the page that opens. You can then introduce yourself and ask questions after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.

When you have a minute it would be really useful if could pop something about your husband's journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

x

Hi Latchbrook,

I have read through some of the posts which I have found useful and I have used the links you have provided thank you and I will look at adding to my profile- but where to start eh?! 

We actually have an appointment in the hospital in Basingstoke tomorrow so I'm terrified what they are going to say and that BUPA or the NHS wont pay for the operation, raising £100000 seems like a ridiculous task.   

x

Let me know how you get on tomorrow LJ5. I didn't realise that there was a possibility that the operation wouldn't be funded by the NHS

x

Thank you I will.

I had no idea either? I thought all operations would be? I'll be asking tomorrow why it wouldn't be funded!

x 

Hi I had my hipec/crs surgery in Christie’s Manchester October last year and paid privately through vitality insurance , it was also available on the nhs but I’m sure the waiting time may have been longer. 

Hi Flowery,

I'm not sure why they surgeon seems so convinced that funding is a big issue? but if BUPA agree to pay for it I would be very happy! I'm not sure if it's to do with the fact the cancer has spread from the bowel rather than another area??  

Hopefully they you will learn more tomorrow. 

Latchbrook and flowery,

It was a good consolation in Basingstoke, the surgeon has recommended the HIPEC treatment and provisionally booked us in for 13th January. So very positive!

Just need to convince BUPA to pay for it, the issue with funding is because we live in Cardiff and the NHS in Wales dont recognise the operation as a feasible option- it seems nuts!!

Glad to hear the consultation went well LJ5 and your consultant has booked a provisional date for surgery.

I'll be keeping everything crossed that BUPA agree to fund it.

x

Hi Latchbrook,

I thought I would update you, BUPA are coughing up the cash for the HIPEC surgery!! We had the preop today and we are going in to hospital on Sunday with the operation taking place on Monday- cant wait for them to just get on with it now.

Added bonus is I can have 5 days special leave from work so I can stay in Basingstoke until my husband is out of intensive care and my mum is coming up to Cardiff to look after my children. It all seems to be falling in to place

x