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Hi All. I've been on HT for a year - degarelix for about 6 months, now Prostap and also Darolutamide tablets. I'm getting some joint pain in hands and feet, mainly at night. It was particularly bad last night in the knees and legs, making me restless...
I probably need to say why what I am going to outline below is a thing for me (not a big thing, but a puzzle). My career for 40 years was working for a bank. Much of this time I became used to calculating interest in numbers of days. Given that bankers...
After my robotic prostatectomy in March, I eventually had my histology discussion 11 weeks later which was generally positive but I didn’t have ‘clear margins’ and at at one point the margin was only 1mm which caused me some concern. My final blood...
Hi All, I have seen a few posts on triplet therapy. my understanding from prostate UK is that you can only have triplet therapy if you have been on hormone therapy for less than 12 weeks and you haven’t started Apalutamide or similar. my dad has...
Hi all, I have been posting about my husband who was due to start Enzalutamide alongside his digarelix injections. He had a starting PSA of 1356 and after 3 months on digarelix his PSA has risen to 1500, they are now saying he could be in the 2% of...
First time posting so forgive me if this seems a bit rambling. My partner (55) was diagnosed with PC stage 4 in March 2024, Gleason 9, mets in spine, pelvis and chest. Started triplet therapy but had adverse reaction to Docetaxel so that’s stopped...
Dear all. I had a Transperineal Biopsy 9 days ago on Wednesday 26th July. Usual symptoms but one that I am finding frustrating to grapple with is that now I’m post biopsy, it’s harder to pass urine. I had no problems before. Now I have to push harder...
I am in turmoil which treatment to have diagnosed gleason 3 + 4 so many side effects I am 65 and no symptons change my mind every other day seen surgeon waiting to see radiation plus hormone guy then i have to decide Is the radiation plus hormone treatment...
Hello everyone, I thought I will report on our appointment today as we learnt facts we did not know: Firstly Jacob is doing well at the moment ( we knew that). We did not know that he has multiple lesions because the bones scan report only counted...
I was diagnosed with advanced metastatic castration resistant prostate cancer early 2023. Gleason score 9, stage 4 with metastases in some bones. No surgery but I've had radiotherapy and current treatment is 160mg Enzalutamide daily and Decapeptyl jabs...
