New here and lucky but still a struggle at night

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Hi, 

I was diagnosed as Gleason 3+3 three years ago, apart from the first 3 months when I had to wait to find out if a tumour had grown, I’ve been fine mentally. No symptoms and no signs of a tumour. 
It’s been 6 months since my last bloods and physical and two years since my last scan, I get all three again in a week and have to admit it’s really playing on my mind this time. 
Common sense and facts all say that I have nothing to worry about, PSA counts so far all below 4 (a slow but steady climb from 2.3 to 3.5) and nothing discernible to physical exam, but at 3 am all the dark and unrealistic thoughts materialise. 
How do you guys deal with this?

  • Hi  I think we deal with it much the same as you. Despite telling everyone to stay calm I do get anxious near results time.  It doesn’t really get easier after 8 years, but I try and tell myself not to worry about things that I don’t have any control over.  Good luck.

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.

  • Hi AI

    I was on AS for 4 years so know what it's like .

    Only difference for me was that PSA continued to rise from about 3 to 13. I had a MRI yearly but presume yours is 2: years cos PSA not really increasing.

    Do u know the tumour size when last MRI done cos that's quite important.

    Best wishes 

    Steve 

  • Thanks David, I guess as long as the sleep returns again I’ll just have to ride it out. 

  • Grundo,

    No discernible tumour at all two years ago, neither the scan nor the physical examination showed anything. 
    Hopefully it’s still nothing more than a mental battle but until I get the results I don’t know, and that’s where the dark thoughts are coming from I think. 

  • Yes ,I understand, Gleeson 3+3 but nothing showing, makes u wonder if it is PC, will be interesting to see if the MRI shows anything this time.

    Good luck with the results and let us know 

    Best wishes 

    Steve 

  • Hi 

    It's entirely natural to wake in the early hours when something is lurking at the back of the mind.  The trick is how to deal with it.  It's an easy thing to say to try not to worry about it, but then we are human after all & worrying is a human trait.  So, on that basis, here are a few things I have found help me that I have tried over the years when work (as well as PC issues were interrupting my sleep.

    1.  Keeping busy during the day so that I am physically nackered

    2.  The old pen & notebook on the bedside table so I can jot down the thoughts running around in circles in my head

    3. Avoiding caffeinated drinks in the evening

    4. When these fail, actually getting up, making a hot drink then sitting in my favourite chair with a book / tv on & usually falling asleep whilst sat there

    My personal way of thinking that helps me most is ''that it is what it is'' & I will deal with it if it happens.

    Best Wishes

    Brian 

  • Definitely PC, they found the cells after a TURP for benign swelling of my prostate. AS started there and then, as I said in my title I’m lucky they found it so early, but sometimes I think it’s a double edged sword because I’m living with the knowledge that one day it may well need treatment. 
    It’s the waiting game and I am not a patient person with these things. 
    I fully recognise that others will read this and wish they were in my place, I fully respect that I have a lot to be grateful for, I hope I don’t have it any worse than this, but it’s still tough at times. 

  • Thanks Brian, must admit that I have been told these tricks but never tried them for fear of disturbing Mrs B. 
    I will try harder to get out of my pit and write a few thoughts down tonight 

  • It's happened to me many times over the years, and like you at 3am I don't get up because I don't want to wake my OH. I use headphones on my 'phone to listen to news / chat on LBC, podcasts or some music.

    This will put me back to sleep on many occasions, but if not at least it's a distraction form black thoughts.

    Derek.

    Made in 1956. Tested to destruction.