My timeline - may be a useful for newly diagnosed men

What was your staging according to the MRI?

Hello Kevin (KevinFc1418c) 

Thanks for your post - that's a great time line and to be honest you are one of the very few who get sorted in a reasonable time.

Sadly the NHS is under pressure and there are plenty of Community members who either wait 6/9 months from initial GP meeting to start of treatment or who like me have no choice in their treatment. Most of us have had to advocate for ourselves to get where we are now.

If only it worked like clockwork in every case.

Best wishes - Brian.

Thanks for posting your timeline and what to expect.

My husband was red flagged to Urology regarding his elevated PSA and symptoms. When he telephoned the hospital he was told it would be at least 6 1/2 weeks before an initial consultation. He has now went privately to see an Urologist and is having an MRI scan tomorrow.

Sending you best wishes.

Wow 6 1/2 weeks is a long wait! All the best for you and your husband, hope the MRI goes well. 

It was PI-RADS 4

I hadn’t realised how slow things can be - I guess I’m just lucky. The NHS in the Exeter area is really jacked up.  

that's the Likert score, I mean the tumour staging from MRI , T1, T2, etc from MRI

how contained in the prostate or not  eg T2 N0M0 etc

Ah OK. My letter said ‘Possible local extracapsular extension. Radiological stage potentially T3a N0’. But subsequent discussions after the CT scan said perhaps T2. So I’m not entirely sure, hopefully will be clarified when I meet the oncologist. 

Hi KevinFc1418c .  Textbook diagnostic pathway. Well done NHS.  Incidentally, PIRAD 4 is not necessarily bad news - it just means they have a clear image of an area of suspicion. ( Are you quite slim by any chance - less tissue to get the MRI through.).  Anyway, good news if they’re thinking T2 off a high teens PSA.  Notwithstanding this, if you go down the radiotherapy route, T2 or T3 can be dealt with successfully to cure - the plan of the radiotherapy target areas will take all this into account, with no difference in delivery and probably no difference in (hopefully temporary) side effects .  AW

Thanks very much for your positive response, most helpful.