Husband just diagnosed

2 replies
174 subscribers
103 views

Hello all, very glad to have found this supportive forum & spent yesterday reading through the threads. Would like to start by sending my very best wishes to everyone - having just joined this journey, my heart goes out to you all.

My husband was diagnosed on Friday. He is 57, PSA 164, T3, Gleason score 9, stage 4 Prostate cancer. He has a PSMA PET scan this coming week as, although his MRI was clear, the consultant seems convinced it will have spread.

We are in quite a lot of shock, and not sure which way to turn. I know we’ll find out more after the next scan & I’ve been reading up on all the different treatments.

I’m very fearful about what this means for his life expectancy. Googling is awful & the consultant presented the news on Friday in such a dour, serious manner that I was too scared to ask about this in front of my husband. He is such a family orientated person, our kids are still quite young (late teens/early 20s) and it might be stupid, but I can’t believe that he might not live to see any of his grandchildren.

Am I panicking unnecessarily? I hope it’s ok to ask this on here - I don’t want to say it to anyone IRL. Trying to present a confident, positive face.

A more sensible question - has anyone worked with a nutritionist that specialises in prostate cancer, and did this help?

Thank you all in advance

Anna42 4 hours ago

Sorry to hear you’re going through this too. My husband was diagnosed in January with advanced prostate cancer and he is 44. I found this forum and it gave me a lot of comfort to hear from people who have been on this journey for years and years, and to be reassured that new treatments are coming through all of the time. I remember someone saying that the diagnosis stage is the hardest and it does get easier when you into treatment and have a plan - and that’s definitely my experience. My husband’s PSA has gone from 186 to 0.2 and that also makes things easier to deal with on the day to day. We are working with a nutritionist, and an integrative oncologist - it’s not for everyone but definitely a path we are glad we’ve explored, for giving us a focus and feeling of control if nothing else. Please do message me if you want further details. Sending love and strength xxx

Alwayshope 2 hours ago

ItHello Summer S and welcome from another wife. My husband was diagnosed with stage 4 in July 2020 and is still going strong albeit it is a rollercoaster of a journey. Since he was diagnosed protocols have changed giving men a chance of going into remission in some cases so stay positive and take one day at a time. The PSMA PET scan is the best scan you can have and will help determine the correct treatment for your husband. A prognosis cannot or should not be given at the moment as there are different types of prostate cancer which can behave in different ways to treatment. Learning about the different treatments gave me some feeling of control but at the moment you don't know what you are dealing with and you can end up going down a rabbit hole. A good source of information is a book which you can download for free.

https://issuu.com/magazineproduction/docs/js_prostate_cancer_guide_for_patients_ezine

There are changes to the diet which can help such as reducing caffeine, processed food, animal fats, full fat dairy, eggs. Eating a diet with plenty of fruit and veg, fish, beans. There is a book produced by the Royal Marsden which has some good recipes.

https://shop.royalmarsden.org/products/the-royal-marsden-cancer-cookbook-2023

Please ask any questions and we will try and help. It is a steep learning curve but things do get better as Anna42 has said in her lovely post.

More from this forum

Husband just diagnosed