New and Anxious

Thank you, hopefully we’ll find out more Thursday. Will post when I have an uodate

Thank you, will he see the oncologist on the same day? We really know nothing, which is a bit unfair as obviously expecting the worst

No, I doubt it but the Urologist will probably start treatment with hormone therapy. Listen to what they say, get copies of scans and ask who and where you are going to be referred to.

Thank you, that makes sense x

Hi Kes, surgeons, "if it's an option." and oncologists, very often favour what they specialise in, so make sure you talk to both...an should you start hormone therapy, this will give you time to to understand your options, and make the right choice for you.

Eddie xx

Just a quick update, went to OH appointment and unfortunately, as expected, metastatic prostate cancer spread to lymph nodes. Doing a bone scan in the next couple of weeks as she thinks it spread there first (apparently uncommon to spread to lymph nodes first) and would explain the pain he is in. He’s been referred to oncology so seeing them in the next couple of weeks also. He started hormone therapy today (Bicalutamide) with an injection next week and every 3 months. He hadn’t had PSA done as they didn’t suspect prostate cancer, that was also done today. Thank you for all your support, looks like he/we will need it for a bit longer xx

Hello Kes256 . Have a look at this video on lymph node spread.

https://youtu.be/WvPHrEmoBnE?si=he5Maoy3lFcLXNvb

If there is multiple spread to the bones or there are multiple metastases then he might benefit from Triplet Therapy but the clock has started ticking from today. In order to get the most out of it then he should start a course of chemotherapy within 12 weeks along with a concurrent start with second generation antiandrogens. In other words don't let timescales slip.

hi i was diagnosed in December and it sounds like your similar to me. it might help if you read my bio , since treatment i don't have alot of pain . best wishes dale

Hi, thank you, yes sounds very similar. He doesn’t have Gleason or TNM score yet, not sure when he gets that. Don’t really know a lot at the moment. Although it’s nice to hear that your pain has mostly gone. Hoping OH does too. Thank you

Just got my OH PSA results, 245, extremely high. Nurse confident that will reduce with the hormone tablet he’s on. Still awaiting appointment for bone scan and oncology and first injection on 19th x