New and Anxious

Having a 5 year old is certainly going to keep him fit but at 63 your husband should be able to cope with most therapies and we can help explain what to expect from them. Nowadays treatment and protocols have advanced considerably which is giving our men a lot better quality of life compared to even a few years ago. Stay positive and let us know what happens on Thursday.

We know had nothing except what is on his discharge letter and the letter he was cc’d in saying about metasised prostate cancer. Assume we will get more info on Thursday. He may have had PSA tests, but I honestly don’t know. 

Thank you so much, can I just ask how your husband is in himself please? Is his quality of life still good and can he do things? Sorry if that’s personal but I really have no idea of what to expect, whether I’m going to be a carer or things will be as normal as they were before

My husband is 81 now and I am 11 years younger. The best way to describe it is that he has to pace himself as the main side effect from the hormone therapy is fatigue. He is still able to do jobs around the house and he loves his veg plot. We have quite an active social life and still go on holiday so I would say that we have a good quality of life, just modified to cope with the new norm. One thing to watch out for is the effect it can have on mental health - my husband is a lot more emotional and can get depressed so I have learnt that distraction is a good remedy but he also takes antidepressants. Your husband will have his own set of side effects which you will learn to live round and adapt your lifestyle to. If your husband has treatment like radiotherapy or chemotherapy it is going to disrupt life for a while so it is important that he informs his employer if he is still working as they should make reasonable adjustments to help him through it. Many men continue to live a normal life and no, your husband should not become an invalid.

Hi, Kes, we all think the worst at times like these, even years into a cancer journey it's easy to assume every new ache or pain is cancer related, but none of us are getting any younger and old age comes with many aches and pains, lymph node mets to the neck are rare my friend, so hopefully your team are just being thorough, and please no Dr Google, he's not your friend 

I'm doing ok, one or two bumps in the road at the moment, which are a pain in the a_se literally, so I may have to adjust my holiday plans, but generally I'm good, independent and enjoying life.

Eddie xx

Hi Kes256 , this is a really hard time for you and waiting until Thursday will seem like an age.  I well remember the initial shock of being told I had PCa and it had spread to my lymphs.  That was 8 years ago.  I would urge you NOT to look at Google as it does not present a balanced view of PCa.  If you want any info, just post on here and you will get accurate replies from people who have/are going through the same as you.

Good luck on Thursday, try and make notes or get copies of results.  Any questions, please ask.  David

Thank you, I’ve given up Google. Although I’m glad I did initially as it made me find this forum x

Thank you, I’ve got a list of questions, hopefully they’ll answer everything. I’ll keep everyone updated. I would also like to just thank everyone for really quick replies, I didn’t expect any. It’s extremely appreciated x

Just a warning that the Urologist might give you their opinion but you can often get a different more positive one from the oncologist so make sure you get to see one. It sounds as if you are getting prepared but don't be rushed and if you think you might not take it all in then ask if you can record the meeting.

Good Afternoon Kes256 

A warm welcome to our group from me - late to the party but I was at Wembley yesterday and it's a rare day I have off!!

You have had some cracking posts on this thread - I will just leave you with this link just in case you need to add to your list of questions:

Questions to ask your Healthcare Team.

If I can do anything for you don't hesitate to give me a shout.

best wishes - Brian.