New to all this PC Milarkey

Hi All

I had a much better nights sleep last night after just one tablet of the Tamsulosin and we have booked that cruise to Italy and Croatia. Thanks again for all your feedback. 

one question do I need to be extra cautious in the sun of just protect as I would normally? 

thanks 

It depends on what you would normally do. We live in Greece and my husband always wears a sunhat and sunglasses when outside and usually long sleeved shirts and trousers but if you do decide to bare most then make sure you have your factor 50 on.

I am jealous of your cruise - we loved Split, Dubrovnik , Venice, Naples and Pompeii, Rome, Florence - in fact almost every stop. A lovely thing to look forward to.

Hello, we are just starting this journey, my partner is 56, psa of 134, bone scan booked, the waiting is awful but this group is amazing I wish you all the very best, keep updating your journey.

Poly, take it one day at a time.  The waiting is a pain but hopefully you will look back, say this time next year and find out it was all worthwhile!

Fingers crossed  for the bone scan.

Take Care, both of you!

Hi Polly1912 Yes, use the time waiting wisely: look on the bio’s on here (click on the icon next to each name) when you see a member who has a similar presenting PSA.  Please note that a very high PSA can still mean a treatment with curable intent for prostate cancer (some men are “high secreters “) , so after the bone scan (presumably going to be done early due to the PSA) you can expect CT scan & biopsy.  The histology from the biopsy is King.  Once you have that, the MDT will suggest the best treatment for your dear partner.  Keep with us and we’re happy to provide any advice from our own experience and perhaps direct some questions you may want to put to his consultant.  AW

Hello

Now that the dust has settled we wish we had asked more questions. For example I was under the impression that Advanced metastatic prostate cancer was when it had spread to the bones but my bone scan was clear. 

My wife doesn’t understand why I can’t have radiotherapy to help control the cancer but my understanding is that it’s because it has spread to too many lymph nodes. We were told that it was in multiple pelvic nodes and also in my neck or shoulder but maybe I should have asked how many or a percentage maybe so I can understand the scale of it. 

I have started the hormone therapy and I still waiting for the scan of my liver but on a positive note we are going on the cruise next week. 

Thanks again all