Husband just been diagnosed

Hi C1 (Caras1 ), the others have all explained that the start of this journey is the worst bit.  Once you get the full diagnosis you will start to feel better.  Your husband is like many chaps on here and having received a massive shock is slowly coming to terms with it.  Trust me, you will get through this.  Please ask any questions or use us to vent, we understand.  David

Thank you David for those words of comfort. 

still trying to get hold of his CNS who is not getting back to him and we’ve emailed too.  2 weeks have passed and no date for PSMA pet scan sadly. 

fingers crossed things will start moving this week - Caras

You are right to give the CNS a call.  Any information you can get is helpful and it feels like you are moving forward.  The waiting is horrible.  David

Hi C1,

Sharing this with others is very difficult at first (or at least was for me, like your husband), it took me several months from diagnosis before I shared this with anyone outside close family.  You see it as something that reflects on you and who you are,and conflicts with your view of yourself, you fear people will look at you differently. To this day some people I work with don't know (I still work) , but all my close friends know. This forum being anonymous really helps as you can share and vent without this concern. It does get better once diagnosis is complete and you have a treatment plan, as things feel more in control. 

I am also Gleason 9, and treated with curative intent.

Hope this helps.

G

Hi G

Yes I think you have hit the nail on the head- I do understand how he’s feeling .   He’s also sad that he’s mucked everything up for us !! - our life together because of the regime of treatment to come . 

Holiday in September probably won’t happen  .  But hey who cares ….  I reassure him all the time we’re in this together because I love him and there will be plenty of time for holidays and our life together .  

On a positive note made giant steps today as he’s actually started reading the info given to us when he was diagnosed about treatment to come and has spoken to one good friend. 

Thank you everyone on here for the advice and support.  
Caras 

It's great you're all supporting him, he needs it even if he doesn't say so.

I wouldn't give up on the September holiday just yet, if he'll be on a similar treatment path to me of hormone therapy and radiotherapy, he'll probably start HT around June and radiotherapy around October, you can have the holiday just before his RT starts! I went to my first RT session directly from the airport on my way back from a ski trip (though my flight was delayed, I did mean to get home first).

G

I totally agree with L1m - definitely look to factor in that holiday.  Maybe leave it to last minute booking?  If already booked, then get the treatment dates arranged to fit the plan.   AW

Caras1 said:

he’s actually started reading the info

Get him to read my bio : it may well be a treatment that is on offer.   AW

Oh ok that sounds promising.   We haven’t got to pay  for it in full end of June so hopefully we will have a better idea of treatment plan.  
He been told to start Bicalutamide once he’s had the pet scan that should be soon and then there will be 3 monthly injections of hormone therapy . Then radiotherapy to follow or at the same time I suppose.    But it may change if it’s spread a lot further I guess. 
C 

Radiotherapy usually starts about 3-4 months after the injections, though once he's on injection the cancer is "on hold" and doesn't grow, so moving RT by a few weeks to accommodate a holiday is usually not an issue (they did it for me) It's definitely something to discuss with your medical team and see what they say.

There is a pre treatment scan about 2 weeks before RT and that needs to factored in too.

There is life during treatment, including holidays

G