Newly Diagnosed

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Hi everyone just introducing myself and my story. I am a very fortunate 62yr old who has sadly benefitted from my older brothers misfortune. He was diagnosed with PC 5 months ago Gleason 8 (4+4) T4 with metastases and has 1. Chemotherapy treatment left at the end of this month. On the back of this horrible news my own children pleaded with me to go for a PSA test. I told them I would but just kept saying I’m ok I’m not ill but eventually gave in and went for my PSA test on the 12 December, now following inspections, Scans and a biopsy I have been informed on Tuesday this week that I actually have PC. Luckily for me I’m classed as medium risk and suitable for potential curative treatment as I have been caught early. My Gleason score is 7 (4+3) T2

now where I am very fortunate is that if it wasn’t for my brothers misfortune I would never had gone for a PSA test and further down the line ended off a lot worse than I am now.

The only decision I have to make is to choose 1 of 2 treatments offered to me prostrate removal or Radiotherapy a hard decision to make without looking at all The pros & cons. I have consultations to come at Christie’s hospital to help me make up my mind in the near future but at least I have the opertunity of being free from cancer where my poor brother dosent..

if anyone has any advice or experience regarding the 2 treatment available any information regarding pros & cons would be greatly appreciated so I can take some questions away with me to discuss when I have my consultation regarding these.

thanks 

  • Update. Had consultation with surgeon today and signed my consent form, my surgery will take place in 6 to 8 weeks, feel ok about it at the moment but guess that the week leading in to the surgery I will become apprehensive and maybe a little bit scared.

  • Hi Teulu, 

    The hard bit is making the decision. My Prostatectomy was a year ago yesterday, so this time last year i was in a bed in Northampton General Hospital. 

    Its easy for me to say, but dont worry about it. The anaesthetic was brilliant, like some one turning a light off and instantly flicking it back on. I wish i could have brought some home, best bit of sleep ive had for ages,

    I have documented my experiences in my profile if you would like to read it. 

    All the best,

    Psticks.

  • Hello  

    Good luck with the surgery - keep us posted as to how it goes.

    Best wishes - Brian.

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  • Hi Teulu 

    Good luck with your surgery, I hope all goes well for you. It's ok to be scared, it's natural. I know that once I made my decision it felt like a weight was lifted. I start my radiotherapy journey next week and I'm scared. I will keep you in my thoughts.

    Take care & all the best 

    Michael 

  • Hi Teulu,

    All the very best with your surgery, all will be well, being frightened is par for the course with this disease but keep the faith, stay strong & do everything by the book……as Millibob says keep us all posted on your progress.

    Very Best

    RP6

  • Good Morning  

    Radiotherapy is easy - it's like sitting on a sunbed for a few minutes! The hardest part is getting to the hospital everyday, finding a parking spot and making sure you know where there are toilets on the way home!

    You can do this - keep us in the loop.

    Best wishes - Brian.

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  • Hi  , I will echo Brian's ( ) comments. In my case radiotherapy was a walk in the park. The logistics of attending may be problematic  but I'm sure that will all work out OK.

    The required bladder content can be a bit of a challenge but little more and in my case the reported fatigue after treatment did not occur. From about the sixth treatment my bowel indicated that I should take its signals seriously but heeding those signals allowed normal life to proceed.

    Post treatment the bowel irregularities have continued and very occasionally accidents do occur (I'm now seven months on from the RT).

    You have gone through by far the worst, being diagnosed in the first instance then waiting for results and eventually knowing the pathway through the treatment is the hardest part.

    Please keep us posted as you move through your treatment and remember there are lots of folks on here who will provide help and encouragement.

    Rod

  • Hi Ziggy, a close friend of mine just completed his Radiotherapy 3 weeks ago and as Millibob stated my friends only inconvenience was travelling to and from hospital everyday, he had NHS pick him upand drop him home everyday so didn’t have parking issues, but his issue was going everyday where for me the end result is far greater than the personal inconvenience. His only side effects were the sweats from the hormone treatment. Since his treatment he has been mainly dry and no problematic incontinence issues, had 2 mishaps overnight but in day time mainly dry and can make it to toilet when he needs to.

    Good Luck through it all Michael.

  • Hi Brian (Millibob) thank you for your advice and kind wishes.I will keep you posted 

    Kind regards 

    Michael 

  • Hi Rod (Osca2023)

    Thanks for your advice and support it is much appreciated 

    Kind Regards 

    Michael