New here and another forum

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Well I guess its time to introduce myself because I've been poring over two forums for a few weeks; Initially was concentrating on 1 forum and then got thrown a curveball.

54m UK. dithering about which group to join for reasons which will become obvious

Previously in urology:

Nov 2024

Episode 1:admitted to A&E with illness/fever and likely LUTI - cleared up with antibiotics

Episode 2 admitted to hospital with gross haematuria -DRE negative.  administered antibiotics and referred to 2wk urology clinic.

December 2024:Undergoing tests to rule out/in bladder cancer ? initially : 

3rd Dec:flexible cystoscopy  shows 2 small flat reddish lesions- arranged rigid cystoscopy

21st December 2024;Rigid cystoscopy :possibly bladder CIS awaiting histology. Urology team query additional possible prostate BPH or  cancer following raised PSA (4.27) 

29th Dec 2024.mulitparametric MRI

January 2025- week 1: results of MRI= PIRADS/Likert 4 lesion . nor prostate enlargement/ 5mm lesion in peripheral zone apex/ within prostate.  advised to have trans-perineal prostate biopsy.

January 9th :  trans-perineal prostate biopsy 

Follow up currently provisionally arranged 23d January

So I thought it would be polite to make myself known to the group; Hello  ;-)

  • Hi Legionw6, and a warm welcome to the prostate forum, though understandable you weren't sure which forum to join,  you can join more than one,  and it's good to see how quickly you have had your tests, though I can imagine, even so, some of the waiting seemed too long. My best wishes with your cystoscopy and biopsy results.

    Eddie

  • Hello  

    A warm welcome to the Prostate Forum, although I know you don't want to ne here. I am Brian one of the Community Champions here, and indeed I also have Prostate Cancer. I do venture onto the Bladder group from time to time and it's no problem being a member of both groups - after all it's "next door".

    I hope your biopsy goes well today, if you have any questions regarding your journey, however trivial fee free to ask them.

    Do please let us know how you get on.

    Best wishes - Brian.

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  • Hi  , sorry to hear your story, but welcome to our little group.  Waiting for results is hard and we have all been where you are now.  Please let us know how you get on and ask any questions, the guys and girls on here are brilliant.  While none of us have medical training for PCa we do have so much real life cancer experience.  Good luck with your biopsy results.  David

  • well that was an interesting morning lol.

    As per usual I had quite a limited amount of sleep due to my mind racing but I resorted to a favourite podcast and eventually got a couple of hours or so.  I left home on a dark, chilly London( I'm a transplanted northerer) morning for a walk to my appointment...and arrived at the hospital about 15 mins later - handy living so close as I appreciate that a lot of people on these forums may have quite a trek to get to their 'local' hospital.

    All went according to plan and expected  time schedules; appointment started on time at 08:00 and after all the formalities and checking of details I was in the biopsy room by 08;20 to meet the gang (3).

    They were all very kind and gentle and talked me through the thing I had been dreading a bit ( I'm a clinical scientist in the NHS so I tend to be an information gatherer, which during these past few months has not been a good thing some times!); I tend to be okay during the day but my thoughts can run away with me during the night.

    They asked if I wanted to listen to any particular music during the procedure - I had a little think and settled on Blur. 

    Although I had been kind of dreading some aspects of today it wasn't quite as awful as I thought it had the potential to be - in fact there were a couple of times that I had to suppress a giggle or some laughter.

    They misheard my music request although I had also said put whatever you want on....

    the ultrasonic probe was inserted and the local anaesthetic was administered and began working after an undignified wait ( IYKYK)

     the music started.......it ws the BeeGees.... How deep is your love!!! ( 100% true) and the biopsies began.

    I was uncomfortable for some of the biopsies but with focussed breathing It was tolerable.. and easier for the last few and the play out ws Rod Stewart singing ' I don't want to talk about it' !  So once again I had to suppress my giggles.

    Chance? Cheeky playlist chosen by them?  Who knows but It certainly took my mind off things to some degree and its always handy to have an anecdote at a future dinner party.

    There will be a wait of a few weeks for today's biopsies but I am in a pretty good place mentally and more than happy with what my team(s) have done for me so far on this unexpected journey.

    I'll update with the results as and when.

    ;-)

  • Hello Again  

    From a Northerner still in the grim North (well Oldham!!). Thank you for a cracking report, and that my friend should be the only part of this journey where you suffer any pain!!

    Th TP biopsy looks to me to be quite easy - 3 years ago I had the old fashioned TRUS biopsy, all you need to know is it involved a bed with stirrups!!

    I wish you well with your results, if you want to ask anything feel free, nothing is too trivial (although with your full time job I think you will be fine).

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  •   , well that’s all done and dusted, quite easy really!  Waiting for the results is the most difficult part I found.  During my first session of RT the music was BeeGees ‘Staying alive’. I found it funny but when I mentioned it, the whole team seemed mortified.  A sense of humour helps in this journey.  Good luck for the results.  David

  • Thanks Brian

    The TP also involved  some stirrups which after they strapped me in and lay me back

    left nothing to the imagination :-0 but luckily wasn’t too breezy in the clinic room 

    thanks for the best wishes fellow northerner 

  • Hi Legionw6,

    For some reason, lying back in the chair with my feet in the stirrups reminded me for some reason of being on a ride at Alton Towers.  In all honesty, I think I preferred the ride although I felt nauseous afterwards whereas felt fine after the biopsy.

    Hopefully, now that it's over the dread will ease a bit & you will get a better nights sleep.

    All the best,

    Brian

  • John, I suppose the music could have been worse for your biopsy, the "Hokey Cokey!!! (In out in out shake it all about).

    Love the Rod Stewart one at the end.

    Hope your results come back favourable.

    Another big welcome to the Prostate Forum from me as well.

    Steve (SteveCam)