I feel a lot more settled today, now that I have been allocated to a treatment pathway, albeit 4 to 6 weeks away. It is, however, still quicker than if I were to also receive HT.
I opted out of HT and I will receive Ultra Hypofractionated RT. This is 7 fractions on alternate days over 3 weeks, totalling 42.7 Gy - if I remember correctly.
This 'seems' not that far removed from the Royal Marsden SBRT 5 fraction protocol, although it has been available over the last 4 years.
Has anyone had any experience with HYPO RT?
I assume that with a higher Gy per fraction than that of 20 or 37 fractions, there could be a potential for greater toxicity. Any information on the radiation side effects and tips to ameliorate them are welcome.
The usual pre-RT micro-enema and full bladder will be necessary. A special diet has not as yet been mentioned. I don't know if it is advisable to have low fibre or not.
Due to sensitivity I already use a daily shower emollient down below. I assume the RT irritation is more in the upper pubic area above the genitals?
Dedalus
Hello Dedalus Fantastic - a plan - I assume you are now in a better place knowing you are moving onto the treatment pathway.
* I can only assume the diet regime will be the same as for any RT treatment - nothing to give you wind - green leaf vegetables, beans, pulses, caffeine, alcohol, fizzy drinks and chewing gum.
* You are correct about any RT irritation - the Radiologists can give a prescription for "Flamigel" if this is an issue.
Good luck with the treatment - keep us posted.
Kind Regards - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
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My PSA this month, 12 months after RT is 0.33 - happy days, my "nadir" reading is in August so I am hoping for a further reduction.
Travel insurance if you are going abroad reduces after RT has been completed so it's worth looking at that after RT has been completed.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Brilliant news on your latest result Brian. Onwards & downwards is the new maxim 
Hi Brian great news and something to focus on ,good luck and keep us updated 
Hi Dedalus Sorry I got the names mixed up there ,head’s wobbling as usual 
