Biopsy Result Positive for Cancer

Hello RMT  A warm welcome to the club you didn't want to join!!  Having said that you are in the best place for help and advice.

So we can give you the best possible advice can you add your full diagnosis to your profile - TNM score and Initial PSA. To do this just go to your home page and click on the chair in the top right. Click on "profile" and then "edit".(You can read my profile by clicking on my avatar - but you don't need to write a novel).

Once we have those details we will be able to give you a better idea as to your future journey - I know you have had the biopsy - have you a date for your MDT meeting?

With my "Community Champions" hat on can I just point you in the direction of the Community guidelines - you can access these using the link at the top of the page - as regards non allopathic, complementary or alternative therapies.

I have 4 adult children - my wife and I had a discussion as to what to tell them - and we were very open with them. We gave them my full diagnosis, treatment plan and answered any questions they had. (I had been in hospital with CKD for 10 days so we really had to say something!). They took it really well and now follow my progress.

I hope the above helps and look forward to your reply.

Best wishes - Brian.

Sorry to hear about the diagnosis. I remember those feelings of absolute shock so very well! We all deal with the news slightly differently - I cried non-stop and wanted to talk it out. My husband withdrew into himself! Like Brian and his wife, we have kept our adult children fully informed all along the way.  We have been more careful in how we have spoken with our grandchildren - tending to let them ask the questions and then answering honestly but in a non-frightening way. So, our 4 year old (then) grandchild was told quite simply that her grandad had tummy ache and needed to go to the hospital. Our teenage grandchildren asked more in depth questions such as 'is he going to die' or will I get cancer there?' from granddaughter!!!!!!. So we reassured her she would definitely not get prostate cancer and that the doctors were going to give her granddad treament in the hope of making him better.

We have not tried alternative therapies but have gone straight down the line with radiotherapy and hormone therapy. This is, of course, personal choice.  All I would say is whatever treatment pathway you choose, make sure that it is from the position of investigated the options, the side effects, the statistics (for success) etc. 

Good luck!

Hi RMT

Although I did alter my diet when first diagnosed in 2013 I don't think I would have gone without the treatment plan

Just not sure if  you can get rid of the cancer by diet and fasting alone

If u are on active surveillance then u could try it but would have to monitor to make sure it's not growing.

That is assuming you have low stats , u don't give a PSA or MRI details.

Best wishes

Steve 

Thanks. Will update Profile over weekend

Make sure that once you have updated your profile, add to this thread to bring it back to the top of the pile, otherwise you may not get any responses.   AW

Profile updated with Results information etc as advised

Good Afternoon RMT

Many thanks for sticking the information up there, is always a good guide as to how we can help.

As you are aware you have Prostate Cancer and if it's left the gland and IS and I know it's an IF in the Seminal Vesicles then your diagnosis would be a T3b. If the cancer goes "walkabout" any further then you would be upgraded to a T4 and possibly then treatable but not curable,

Below is a link to Prostate Cancer UK's leaflet how Prostate Cancer is diagnosed. There are quite a few other useful documents where I found that one for your information.

https://shop.prostatecanceruk.org/our-publications/all-publications/how-prostate-cancer-is-diagnosed

I hope this helps.- I am aware now of you views on treatments - I am just pointing out that although prostate Cancer is a "slow" growing cancer and with an initial PSA of 43 perhaps it's time to be a little more pro-active.

If I can do any thing you just let me know.

Best wishes - Brian.

Hi RMT.

A warm welcome. I have read your profile and see that you have a PIRADS 5, Gleason 7 with possible spread to the seminal vesicles which means that it is potentially a mid to high aggressive form of cancer. As you are probably aware the nuclear scan was offered to confirm whether there was any bone metastasis so this is an unknown. Also you have not said whether there is any lymph node involvement, but if there was then this can act as a superhighway for the spread of micromets which can develop and cause problems at a later date. I applaud that you have taken control of your diet and lifestyle to keep as fit and healthy as possible. What you put into your body is your choice and I would urge you to look at the most recent information on all your options from reliable scientific studies. Don't forget that no matter what you put into your body can affect many different systems and metabolic pathways which can interact both beneficially and detrimentally so I would advise discussing them with your medical team before you take anything - this is why they ask you what supplements, vitamins, medication etc you are taking. Dosing is a major consideration, too little of a drug may not be effective, too much could be harmful and the content of a supplement is not regulated so you can not be sure of exactly what you are putting into your body.The other thing to think about is that prescribed medication has had to go through considerable testing and approval processes to ensure it's efficacy for a particular disease, whereas supplements are not subject to the same vigorous testing. You already have a fairly high PSA which means that the cancer cells are expressing the protein at a higher rate than normal. These cancer cells are 'feeding' off your testosterone so as long as you still have testosterone and prostate cancer cells in your body then potentially the cancer can continue to grow. There is a lot of work ongoing in the medical field identifying the exact mechanism involved so that targeted immunotherapy can be used to combat different types of cancers, but what is evident so far is that a one size does not fit all, and at the moment only tend to be used under controlled conditions led by several recognised medical centres. I personally would not wait too long before deciding that action has to be taken so that you remain within a curative pathway.

All the best in your research and deliberations.

Thank you