Prostate Recurrence Radiotherapy

Hello, thanks for sharing this. My partner is currently having tests at Ninewells, no diagnosis yet but with a PSA of 134 we are expecting something! Just had bone scan, now waiting on mri.....how did you find your care and treatment? I know you were diagnosed a wee while ago, I am worried about waiting times but we are on the journey now. 

It's been really helpful reading everyone's stories, the information and advice is fab!

Hello Beefy24 

Cracking post and thank you very much for taking the time to post that - I feel sure it will be a great help to many on their personal journey.

I wish you all the best moving forward.

Best wishes - Brian.

• Hi Polly 1912, I’m sorry to hear your partner is going through the prostate procedures but I can assure you that the care and treatment at Ninewells is absolutely fantastic. Every single department I dealt with was so helpful and nothing was too much trouble and always with kindness. It’s a time of high stress and I know how anxious you can get waiting for results. The procedures have come a long way since my initial diagnosis and they waste no time in getting you on the treatment schedule once they and most importantly you decide on the course you wish to take. Please feel free to contact me at any time if you have any concerns or questions or just for a chat. Best wishes for you and your partner ️

Thank you so much! That is reassuring to hear️

I have always felt it necessary to make my story available to everyone who is going through treatment since we all have a thirst for knowledge on something we all know so little about until we are unfortunate enough to find ourselves faced with it. If I can help anyone in even a small way then I’m happy to have helped. 

I’m glad that gives you some reassurance and remember you are never alone in this , I’m a good listener ️

Thank you for your post Beefy24. I was diagnosed a couple of months back and am struggling with the two options of surgery vs radiotherapy. Can I ask how you came to the decision of surgery? Please forgive me if you have already written it in previous post, this is my first day here.

Hi Ethan sorry to hear you’ve been diagnosed as having PC. The reasons I chose surgery were that since I’m in sales and driving each day I felt that the threat of the urgency to visit the toilet , either No1s or more especially No2s as an after effect of radiotherapy was something I couldn’t handle. As it turned out this isn’t really an issue after radiotherapy as I discovered after my 33 visits for my recurrence treatment but you are informed of double incontinence as a worst case scenario. The other reason I elected for surgery was the peace of mind that if everything cancerous was removed I would be free from its grasp. I was also aware that should there be any evidence of remaining cancer that I could then get treatment to eradicate it. Not sure if that’s an option the other way around, if there’s signs after radiation that surgery is available ? Perhaps someone else on here can clarify that but I feel I was informed that wouldn’t be an option. Hope this helps Ethan and if there’s anything else please feel free to ask and best wishes with your chosen treatment ️

Thank you Beefy24 for such a quick reply, really appreciate it. It actually feels that some of the burden I’ve been carrying alone by myself has lightened a little just by saying I have cancer to someone else. And I think you may be right, I may have read that more damage will be done to the body, hence a worse outcome if surgery is attempted after radiation and not the other way around. Thanks again for sharing your story.

Hi Ethan I’m glad that may have enlightened you a bit and it’s worth noting down all your questions and concerns for discussion at your next meeting with your team. I know this too well since your mind is racing most of the time and it’s easy to skip something then realise afterwards that you didn’t discuss it with your consultant. Don’t carry the burden alone just feel free to get in touch and get things off your mind. We all know how it feels and this forum is the best I’ve seen for help and support . Keep the faith