After a long few months my dad finally has a diagnosis
His biopsy was a 3+4 and his PSA started at 70
After a CT PET scan and Bone scan he has been given a diagnosis of T3 N1 M0
The consultant first said it hasn't spread and then read further down the notes (which he had obviously not read beforehand) and then told us it has spread to a nearby lymph node!
He also said the treatment is now not curative.
Dad started Bicalcumide last Wednesday and then had his first HT injection this Wednesday.
His next one will be in 3 months time and then at some point (I think after two lots of injections), he will start 4 weeks of RT.
Basically I don't know if a nearby lymph node means it's a poor outlook or if they can still give him a good chance of 5years+? All the information I seem to read says spread to Lymph nodes is similar to it spreading to bones but when I asked the consultant if it's classed as Advanced or locally advanced he told me it was Locally advanced.
The consultant was greek and unfortunately very difficult to understand. We also got ushered out within 10 mins so I feel like we didn't get the full picture. They told us they would send a copy of dad's pet scan report by post but we have still not received anything.
I feel very confused and upset by the whole situation
Hi Lisa
My PSA was lower than your Dad's, but I was T4N1M0 and I was treated with the 'intention of curing' - so all is not lost at this stage.
Also, do you know who his Cancer Nurse Specialist is? If so speak to them - they have a much better bedside manner than consultants in my experience.
Regards
Stuart
Hello Lisa16 A warm welcome to the online Prostate Cancer Community.
I am so sorry to find you have had some problems with your consultant and to be told the treatment is not curative. There is hope I can assure you.
So your dad is Gleason 7, Initial PSA 70, T3 N1 M0. - As far as I am aware that diagnosis can be cured. My initial diagnosis was Gleason 7, Initial PSA 182, T3a Nx M0 - The only difference being they could not tell if the cancer had got to my lymph nodes or not due to a "shadow" on the MRI.
I was treated by an oncologist at Christies in Oldham which is a specialist cancer hospital trust covering Greater Manchester and in her own words. "We will blast the lymph nodes with RT and you will be on a curative pathway". In your dad's diagnosis it's the "N1" that confirm it's in the lymph nodes.
Personally I would ask your GP for a review of your dad's diagnosis and ask if the Radiotherapy can be extended to the lymph nodes.
* It pays to have the NHS App if you live in England and request FULL access to dad's records - that way you will see what's been said.
* You can read my journey in the last 2 years from diagnosis to now by clicking on the icon of the beach or my user name.
I hope the above helps and this re-assures you. Please get back to me if you need any further help or information and yes, being in dad's lymph nodes makes this "Locally Advanced Prostate Cancer.
I aim to be around for more than 5 years plus!!!!
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hi Stuart, thank you so much for your reply. It is good to hear a positive story.
No I don't think he has been given a cancer nurse yet. I will find out. I feel like I'm always ringing and chasing. I had to chase them to send his results to our surgery so he could start his HT. :(
I'm glad you are doing well. Best of luck with your future treatment.
Hi Brian, thank you so much for your reply.
It's so good to hear a positive story and it's really lovely that you've talent the time to give such an in depth and informative response.
I will definitely speak to them about RT on the lymph nodes and get a full review of his diagnosis. I'll keep you updated.
Good luck on your journey and positive thoughts :)
It's not a problem - that's why we are here - if we can help just one person get a good result then it's all worthwhile.
It's OUR Community and YOU and DAD are most welcome members. Feel free to ask anything, however trivial - it's no problem.
To save us keep asking you the same questions, can I ask you please to update Dad's profile when you have a few seconds. Just include his journey to date and his Diagnosis - you don't need to write a book like mine. To do this on your home page, go to the chair in the top right, click on it and then "profile" and then "edit".
Many thanks and as you say - keep us posted.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
If you get no further on this , which u should do, could be worth getting a second opinion privately because this is important.
Non curable would probably mean being on HT indef and you don't want that unless absolutely necessary.
See what you can find out and do come back for more assistance.
All the best
Steve
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