Hello everybody peeps

Hello Magly  and a warm welcome to the MacMillan online Prostate Community - it's a club you really didn't want to join.

It would appear you are almost 2 years behind me - I started off as locally advanced but thankfully the little bastards had remained in the Prostate. (You can read my journey by clicking on the icon of the beach).

I know you have completed your profile, if you could add your PSA figures, Gleason score and TNM staging this will help others help you.

A couple of things:

* HT/RT - A combination of this treatment will see you suffering from fatigue at some point so it's important to keep as fit as you can.

* This treatment has a tendency to thin your bones so if you have not already been prescribed them ask your GP for Calcium and Vitamin D tablets.

I hope the above helps. It's OUR Community and YOU are a most welcome member - feel free to ask any questions - however trivial and to join in any conversations - we aren't a bad bunch!!

Best wishes - Brian.

A warm welcome Magly.

Well you have things under way with the hormone therapy which is putting the brakes on things and have a plan for radiotherapy. Brian has just pipped me to the post with his comments so all it leaves me to say is that we are a friendly bunch who will answer your questions based on personal experiences. Try and get as fit as possible otherwise fatigue might catch up with you but remember that 98% of men die with prostate cancer and not of it.

Hi everyone. Thanks for the warm welcome. 

I have updated my profile with more information about my treatment plan. Going for bone density scan end of this month and planning scan end of February. 

Hello Magly  Thank you for updating your profile - it saves us asking the same questions every time we chat.

As I said in my original post 14 days ago - you have the same diagnosis as I have apart from the PSA level- so a warm welcome to the Gleason 9 Club. Your treatment plan is the same 3 years HT with RT and a bone scan thrown in for good measure.

I hope all goes well for you - if you have any questions - feel free to ask.

Best wishes - Brian.

Hello Magly - good to meet you!  You have exactly the same headings as my husband! We are 11 months ahead of you. Might I ask how long they are proposing for you to be on hormone therapy (ht)? The reason I ask is that the prostate cancer nurse says 2 years, the oncologist started by saying 6 months. Half way through the RT he casually dropped in 18 months! In the summer he said my husband could sop at 1 year if he wished but if he wanted to do 18 months that might be a bit better! Apparently there is limited evidence to go on for this stage!

Hi there nice to meet you. As soon as my biopsy results came in the urologist started me on tablets for 28 days followed by Prostap injection two weeks into the tablets and then every three months from then on for three years. My oncologist also said that I would be on the injections for three years. 
I think it will be that long as a start point and hopefully I won’t need to continue after that. I have updated my profile with the latest information I have received from the oncologist.  
I hope this information helps but feel free to reply back. 

Hi Magly , I was diagnosed at 71 in 2018 with Gleason 4+5=9, T3A N0 M0 but a PSA of 11 (risen to 15 by the time treatment started). I also had three years of HT with 20 sessions of RT in Feb/Mar 2019. It will be three years this June since my last Prostap injection and I am on six-monthly PSA checks and it has been stable at 0.2 now for two years. I am now 76 and walk about 30 miles every week, swim a mile twice a week and go coastal rowing as often as the wind and tides allow.

Good luck with your treatment and please ask any questions as there will be someone here who has an answer for you.

Thank you , Magly. Wow! 3 years! My husband was diagnosed aged 75 . Iwe are both desperate for the end of HT but both really worried that 18 months might not be long enough given what others have been told. He has decapeptyl but I don’t think there’s much difference between that and any of the other brands?

Hi Seamus, thanks for the encouraging words. Unfortunately I have been waiting to see a podiatrist for about 3 years now as I have an ACL reconstruction in my left knee that has gone again and ankles that roll outwards so it limits my walking distance but I do get about 8-10 miles a week. Hopefully I have an appointment with podiatrist on the 26 of this month and they can help.