72yo. Male of course. Had the 28 day tablets to shrink the Prostate. Had my first hormone injection.
Suffering with diarrhoea and disturbed nights. Seems dairy exacerbates the diarrhoea. I take 1xImmodium when it gets too bad.
Had lots of hot flushes but these are occurring less frequently. Got a kidney stone too. Large, and told by medics that it is not obstructive and might have been there for years.
My wife is a great support. Even so, feeling a little vulnerable and isolated. Spent 14 hrs in our local A&E last week. Kidney pain and butt ache. Seem to have settled a little since. Given codeine but the insert says not to be taken with enlarged Prostate. Hmm....
Any advice or ideas you guys might have, please let me know.
Hello MeltonMark A warm welcome to the Prostate Online Community - we are a decent bunch (even though I said it!!)
I can't advise on the diarrhoea - however the disturbed nights will be a combination of the Prostate Cancer and Old age!! We all suffer them sorry to say.
A bit early for the hot flushes - I take Sage tablets (Menoforce from Holland & Barrett - other retailers are available) these work for me and I have been on them for 18 months - A tad expensive but better than sweating!!
As we all say Prostate Cancer is a "couples cancer" and it's great you have the support of your wife - mine has been a star and with the help of the Community I am fine 2 years in.
A bit of house keeping if you can please : To save us all asking you the same questions can you fill in your profile - Staging TNM details and Gleason score. To do this top of your "home" page - click on the "Chair" top right. click on "Profile" and then "Edit" (you can read my journey by clicking on my name or the beach - you don't need to write a book but it should give you an idea!!).
I am sure other Community members will be along soon to offer better advice than mine. Remember it's OUR Community and YOU can ask anything and join in any of the conversations.
Best wishes - and welcome - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hello MeltonMark.
A warm welcome from one of the wives.
Interestingly your post is similar to one which was started this morning headed 'Just Saying Hi' so can I suggest you wander over there to my response which gives hints on diet which might help you with your gut problems.
For hot flushes my husband has 1 - 2 cups of sage tea a day which he found helped with reducing caffeine as well.
As Brian says it is very much a couples journey and certainly when my husband was first diagnosed I thought my world had fallen in. By pulling together we have found that it has brought us a lot closer and we make sure that we enjoy life to the full, albeit differently to before diagnosis and within the limitations that the medication causes.
Please ask any questions no matter how small or silly you might think them - we have all done it and I am sure that someone will get back to you.
Thank you so much for your response. With your permission I shall show it to my wife.
I am still finding my way around this forum, but shall try and access your earlier response to 'just saying hi'.
Best regards to you and your hubby.
I hope I have copied the link for you just to click on.
Hi MeltonMark,
I can certainly empathise with the pain a kidney stone can bring having had one myself a few years ago & ended up in A & E. The medics there said it was equivalent to giving birth!!!!!
When I was having radiotherapy a few months ago, I had occasional problems with diarrhoea & was advised to try Immodium & found one tablet quickly sorted things out, but to make sure I kept hydrated. As I was having to drink at least 2 litres of water a day during treatment that wasn't too much of a worry.
Re the disturbed nights, I presume you are referring to frequently having to go to the loo (some nights I was up 7 or 8 times & a good night was 5 visits). If that's the case, advice I was given was not to drink anything after about 6 or 7 in the evening, & rather than stand up to pee, it was better to sit down as this helped the bladder relax & so emptied more fully.
All the best, & if there's anything you want to ask, fire your questions away. There are many great people on here who are more than happy to help.
All the best
Brian
Hello MeltonMark As I said above it's a "Couples cancer"
With your permission I shall show it to my wife.
Mrs MeltonMark is most welcome to read the posts and join in should she wish. OUR Community and you are BOTH more than welcome.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
You beat me to it Brian this time. I was so chuffed with myself for getting the link copied that I forgot to add that the community is for everyone.
MeltonMark, you will find that some of us have a wicked sense of humour which helps us get through this journey. Yes we are serious when we need to be but also wander off piste to a whole range of topics like football, doughnuts, weather, pets. It's our community to make it what we want.
Hello MeltonMark
with your chosen name for this forum I am wondering if you live in Leicestershire? If so there is a local charity called Prostaid. They run monthly support meetings and have some very informative events. Happy to give more details and wives attend too!
Thanx for your response. Much appreciated. Alas, no. I live in the North East. I am new to this Prostate cancer universe. Don't know if there's a local chapter of Prostaid up here?
Best regards
Thank you. I have been much uplifted by yours and others responses. Such a relief to learn from you all that my symptoms and side effects are often common to others.
Again, a big thank you.
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