Recent confirmation that prostate cancer has spread to bones

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(Originally posted in the New to the Community section, sorry for the duplication!)

Hi, I was diagnosed with prostate cancer in October (aged 47) and initially it was thought there had been no spread and I was on course for surgery. But bone scans showed something on my ribs and now further scans have confirmed spread to ribs and possibly pelvis and spine. I've already started on the hormone therapy.

It has completely knocked me sideways. I'm now waiting for my first appointment with an oncologist next Thursday, and know it is now about controlling it rather than curing it - but I'm struggling to come to terms with that and understand what it really means. I made the mistake of googling it when the first scans came back, and am now ping-ponging between despair at having no time, and trying to remain optimistic about what the treatments could do for me. 

Just feeling a bit lost and overwhelmed - hoping that the appointment next week will give me some more info. 

It's been helpful already just to read through some of the forums here, so thanks already to everyone!

Mike

  • Hello Mike - A warm welcome to the Prostate Cancer Community - if you've been reading our threads already then you know we are a decent fun loving bunch!!Grin.

    I am so sorry to find you here at 47 years of age. Mr Google is no place for help and advice, stick to trusted sources such as MacMillan Cancer Support and Prostate Cancer UK.

    There are now a wide variety of treatments available to people diagnosed with Advanced Prostate cancer - so once you have had your visit to the oncologist on Thursday let us know how you get on. (Don't forget to make a list of your questions for the oncologist before Thursday - otherwise you will forget something).

    This is OUR Community and please feel free to join in any conversations and ask any questions you have - you will get honest answers.

    Don't forget - there's always the help line on 0808 808 00 00 (8am - 8pm 7 days a week) if you have any questions or just need that little bit of extra support.

    Anything else - just ask.

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

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  • We are on a shared journey my friend. I am older at 64. I too was told the news 2 weeks ago and have ribs, spine and pelvic bone affected. I am struggling with this as well. I have found this forum to be really supportive and have always answered my questions and fears. At this early stage all of the support I need is only just being put in place by my local Gp practice.. Try to keep positive I know how difficult this is. A journey shared with this support community helps me a great desl

  • Mike5150, welcome to our Club that none of us wanted to join.

    Advanced PCa diagnosis is definitely one hell of a shock.  It was to me and I was 20 years older than you.   I remember over 6 years ago being absolutely devastated and wish I had found this community then.  The journey isn’t easy but please know that there are good times along the road.

    I hope you have the support of a partner, relative or friend, who you can rely on.  My advice to you would be to take it day by day until you have more info about active treatments.  For me and other posts I have read, you are at the worst stage of this journey but it will get better.  
    Please ask any questions (there are no silly ones).  Take care.  David

  • Mike are you able to provide an update on your appointment 

    Kindest Regards 

    Broxi1872

  • Hi Broxi, the appointment is Thursday, so a couple of days to go. Trying to stay positive in the meantime. 

    Thanks,

    Mike

  • Good luck on Thursday.  David

  • Good luck mate and hope all goes well 

  • Hi guys sorry in advance but don't know if I'm doing this properly not very tech savvy. I want to talk about my journey so far with diagnosis ,pain and treatment all suggestions welcome. Thanks 

  • Hello   A warm welcome to the online Community. Let me point you in the right direction:

    * Start your own thread - on the home page click on +New in the black box and in the New to the Community you can introduce yourself and tell us your story and ak questions.

    * When you have a chance - please edit your profile so we don't keep asking you the same questions - to do this on the home page - click on the icon of the chair - top left - then "profile" and then "edit" and you can tell us how you got here. (You can read my profile by clicking on my name or the picture of the beach - but you don't have to write a book!).

    I hope this helps - I look forward to reading your story.

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Update - I had my first appointment with my oncology consultant yesterday. She has reviewed all of my recent scans (bone, CT and PET) and said that it is not conclusive that they are showing spread of the prostrate cancer. I didn't take it all in (my partner did, she's the brains of the outfit) but the gist was that some of the evidence they would expect to see across the scans to corellate the findings were not there. 

    So it's not ruled out, but not confirmed, and if it is there, there's not much if it. 

    So we are back to treating the cancer in the prostrate. They won't do surgery