Hello

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  1. Recently been diagnosed. Started on the hormone treatment despite all the exciting things on the news About new discoveries. 
  • Hi ToFo and welcome 

    A few stats would help u get some good advice.

    IE PSA , Gleeson score and MRI report

    All the best

    Steve 

  • Thanks for the advice. PSA 8.5, Gleeson 4:3, T 3a, MO

  • Ok so not too bad, low PSA, medium aggressiveness.

    Just escaped outside the gland but not affected anything else like nodes etc.

    So, still potentially curable, HT being used to quieten things down before a dose of RT which should finish the cancer off.

    Am sure things will be ok, hope all goes well and keep us posted, any other questions please ask

    Best wishes

    Steve 

  • Seeing the oncologist one Wednesday, I do not like the sound of RT treatment or the potential side effects now or later. Sounds too aggressive 

  • Believe me RT ok, I had it, probably easier than the HT and effects only last for about 4 weeks and  not too bad anyway.

    Come back when seen oncologist.

    Hope goes ok

    Steve 

  • Hi ToFo.

    Just to say hello and that I had 20 sessions of RT in February/March and am still on HT. The RT was easy, there was a bit prep to do before each session so that the bladder was full and bowels empty. The main side affects I've had from HT is hot flushes. 

    My pre treatment PSA was 14, Gleason 5+4=9, T2 M0 N0 and my PSA is now 0.06

    Best wishes on your journey.

    Regards

    Peter 

  • Hello   - A warm welcome to our exclusive "club"!

    Late to the party as ever but I would only be saying what  and   have already said.

    I am on the HT/RT route and you can follow my journey by clicking on the icon of the beach. I am 22 months into my journey - I have had the up's and down's - my initial diagnosis was much worse than yours but as I sit writing this reply I feel amazing.

    Feel free to ask anything you want - however trivial you may think it is. Keep us posted on your progress.

    Best wishes - Brian.

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  • Interesting story Bob, entertainingly told. Reassuring, thank you for sharing