New diagnosis

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Husband diagnosed last week. Not expecting it .  Waiting for a phone call to check it hasn’t spread and don’t have any Gleason scores or anything as it’s early days. Hospital said would ring at 9.30 and 3 hours later still waiting .  Understand there are staffing issues but anxiety through the roof . 

  • Hello Again Musky

    Welcome to our little community - we are a friendly bunch.

    I did ask you about Gleason Scores etc but as you haven't got that far yet on your husband's journey, keep us posted as to where you are with the hospital etc.

    Feel free to ask any questions you wish - however trivial - I am sure someone will pop along with an answer.

    Best wishes - Brian.

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  • Hi Musky

    Welcome, your stress is to be expected, being told this news can have you biting your nails off, The good thing is that PC is one of the slowest growing cancers, once his team have all the information they can act on it, phone calls are the worst, having a face to face discussion is more personal, plus you feel you can both ask questions rather than trying to put your questions over the phone. 
    I hope they phone soon, if they do not, I would phone them, even if it’s just to leave a message.

    Stay safe

    Joe

  • They told us it needed to come out and the MRI was showing it had not gone anywhere else but had CT on Friday to check .  The waiting is the  worst. Not slept and waiting for the phone call they said would be at 9.30am and still waiting.  

  • Hi Musky

    realise no biopsy yet but if u can give us last few PSA  results can give a few pointers , only if u want to , I understand your anxiety..

    Or lets put it this way.

    Generally speaking (obviously not always)  If PSA  is under 10 (not a disaster if over that a bit) and u have already said MRI shows not spread then hopefully a good outlook and highly likely to be curable.

    Best wishes

    Steve

  • Received the news that his psa was 4.17. The Gleason is 5+3 =8. T2 so contained .  Appt next week to discuss options 

  • Hi Musky

    High Gleason Score, T2 Contained - It's very much able to be treated to be "curative". Keep us posted regarding your meeting. I would be writing a list of questions to ask at the meeting.

    I would have thought you would have the choice between surgery and HT/RT. There are pros and cons to each so you do need to be thinking of what you need to ask.

    If it helps many of the "Community Regulars" have charted their personal PC journey - you can read mine by clicking on the icon of the beach.

    Happy to answer any questions you may have.

    Best wishes - Brian.

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    Strength, Courage, Faith, Hope, Defiance, VICTORY.

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  • Hi Musky

    The stats are not too bad. As Brian has said looks like surgery and RT are options. That said don't be bullied into making a snap decision. Take your time to read up on any options suggested.

    Regards

    Stuart

    Trying to get fit again!
  • I was just wondering what other people’s wait time was for surgery. They said it could be between to 3 to 5 months. Will know more when we see the surgeon next week.