Hi All

Hi there,

Really sorry you've joined the club but it sounds like you should be curable with an OP if it is all contained.  PC is slow growing which is one good thing but it does sound like you have had to wait too long to get to this stage.  I thought there was a 6 week treatment pathway but it sounds like you are way beyond that.  Have you been given a Cancer Nurse Specialist?  If so I found they are good at fighting your corner - don't be shy about giving them a call.  They helped push some of my early appointments forward.

Hope things improve and you get dates for next treatment steps soon.  The waiting is the worst but as I said earlier it is a slow grower so try not to worry too much.  

All the best Steve

Hi welcome to the group.My diagnosis was in Feb this year, locally advanced and started on HT march.Have they not discussed HT with you as it will stop the cancer growth while they you make your mind up on what course of action you want to take.Click my icon for my history so far cheers Bob 

Hi LTC61

Welcome to the club. PC is a slow growing cancer in most cases however as you live in London the NHS guidelines are:

* Under the Faster Diagnosis System there should be no more than 28 days from your GP referral to diagnosis and

* No more than 62 days between the hospital being given the cancer referral to treatment starting.

As Steve B says above if you have a Cancer Nurse Specialist see what they can do otherwise contact the hospital PALS (Patient Advisory and Liaison Service) and ask them to check up on your care plan as you have anxiety!

I hope this helps.

Kind Regards

Brian.

My delay from raised psa to surgery was 11 months , due to Covid issues , and my reluctance to accept that I might have cancer . G4+3 . No sign of spread on scanning or at surgery . Now 18 months undetectable PSA . One never knows but the delay doesn’t seem to have made any difference at all 

Thank you - that's very reassuring. It's all the in built delays from multiple steps that get to you.

An update. Yesterday I had the results of my first PSA test after Radical Prostatectomy in September. PSA almost undetectable. Histology showed clear margins. So all good (for now).

As a reminder my stats were G4+3 T2c. On both sides and close to the edge.

Will add my bio when I can work out how to do it. 

I'd just like to take this opportunity to the thank all the regulars on here for their support, advice and kindness. I really cannot tell you how much reading your responses, to me and others, has helped me deal with my fears, anxiety and mental health issues this year. You are superstars.

May I wish you all the compliment of the season and a good luck for 2024.

Cliff

Hi Cliff

Great news that - Good news is always something to shout about - as you say

LTC61 said:

So all good (for now).

let's keep it that way!!

As for your bio : Go to the home page and click on the image of the chair - top right. That will open the drop down menu - it's then "profile" and then "edit". I look forward to an interesting read.

Best wishes - Brian.