Positive PC Diagnosis

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Hi all

Following prostate biopsy, now have positive diagnosis of PC Cancer. 

I'm 49, in good health, had a PSA of 3.4. Due to see Urologist again next week for consultation post biopsy on what to do but initial recommendation from him is Prostate Removal.

From biospy, 2 of the 5 cores showed cancer, confined to left side of prostate only, was expecting him to recommend localized operation to just remove cancerous growth, really taken back by full prostate removal recommendation.

Scared of side effects of all possible treatments (been reading lots). with Radiotherapy, do you have to have HT?

Appreciate any advise on lasting effects of ED, incontinence, etc

Head is spinning. 

  • Hi GeeHudd. Sorry to hear of your recent diagnosis but at least your reaching out to a great community.

    If you can post your Gleason score and MRI results then we can better offer advice and support.

    I was diagnosed with PC in 2020 and went on active surveillance until last October. Then I went on to have Hormone therapy and Radiotherapy. I had 20 fractions of Radiotherapy finished in March. 

    Everyone is different but the only side effects I've had is hot flushes due to the HT and trouble peeing after RT but have been given Tamsulosin for that and all is well. I have had no problems regarding ED or incontinence.

    You can read my journey by clicking on the picture of my cat.

    Hope this helps.

    Regards 

    Peter 

  • Think it was Gleeson 7 but dont remember if it was 3 & 4 or 4 & 3. Likert score 4. 

    Been told low Grade Intermediate cancer.

  • Hi GeeHud

    Sorry to hear about your diagnosis but be assured there are a lot of people here to answer your questions.

    Radiotherapy will always be preceded by 3-6 months HT and the HT will continue for around 2 years.
    I have not heard of partial removal, I think if you select for a prostatectomy they remove the whole prostate.  Ask about nerve-sparing, it makes a difference with regard potential ED post-op.

    Good luck and stay strong, Steve

  • 3 + 4=7 is a fairly low score and slow growing as was mine. My MRI showed localised within the prostate. T2 N0 M0.

    My initial reaction was to have it removed but after consultation with Oncologist they recommended RT route because of other underlying conditions and I was fairly young (58) and there was less risk of ED. 

    Regards

    Peter 

  • Hi GeeHudd Welcome to our select club!!

    That's a low PSA and with a Gleason score of 7 whichever it is 3+4 or 4+3 and even without your full diagnosis (T and N numbers) as the little sods are only in one side of the prostate you are a candidate for removal, HT/RT or Brachytherapy I would have thought.

    The answer is - sorry to say - a very personal choice. You need to research all 3 treatments, ask questions of people on here and read their personal journey. see how they have coped and what side effects they have had. You then need to make a list for your consultation next week with the pros and cons of each treatment with your questions on each!!

    As Peter (outdoor walker) said above we are all different!!. And as he said you can read my HT/RT journey by clicking on the icon of the beach.

    I am happy to answer any questions you have.

    Good luck on your personal journey - keep us posted of how you get on and what choice you make.

    Best wishes 

    Brian.

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  • i accidently clicked flagged to moderator on one of the posts - sincere apologies - new laptop + lots of tears. 

    Thanks for replies so far

  • Hi G

    At your age think I would be a bit wary of surgery because of potential ED issues.

    Not saying you'll Def have these issues but with RT less likely.

    Possibly also consider active surveillance as your PSA very low,.

    I would ask the oncologist if would be possible to consider RT because you should've been offered both.

    Good luck

    Steve 

  • Ha - Don't worry - I tend to speak my mind and some of my posts arrive there without being flagged!!  SunglassesJoySunglasses.

    Happy to help!!

    Cheers - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Hi . If you are a low risk intermediate, you are probably a Gl 3+4 . So ,

    You are possibly a candidate for active surveillance ( regular biopsies only .

    You would probably not need HT with radiotherapy.

    There are therapies such as Tulsa or cryotherapy which offer localised treatment.

    i had a robotic prostatectomy ( GL 4+3 )2 years ago , and lead a normal life for a 70 year old .

    No panic , take your time , read , make your own choices

    Best wishes 

    Bill

  • Oh, you too. I am often in the naughty corner Laughing.