A BIT OF A MESS REALLY.....

Hi 914 Soldier 

Hello soldier, I'm sorry to read that your surgery resulted in a stoma. Although we're advised it could be a possibility when we sign the consent form, we never think it will be us. Well, I thought that about cancer as well, come to think of it. If you want to read my profile you'll see that my story wasn't straightforward either. It's a good idea to write a profile yourself as it saves you repeating yourself and helps others when comparing treatments etc. Just click on my username to read mine.

There was talk about salvage chemo with me before the pet CT found bone and lung mets. I was told that my cancer was unpredictable and had acted out of the ordinary, also that I didn't fit the usual patient profile. Since being part of this forum, I've come to learn that MRI or/and CT prior to surgery is the norm and I had neither. I often wonder if it had been investigated properly at the start, would I still have ended up as stage 4. You live and learn and it's too late now but it is still frustrating to think that it was assumed to be a simple cancer without proper investigation.

I'm not sure if I've answered your question but I hope you get some answers re the MRI. Best wishes for the RT

A x

sorry to hear 914, you've been thru a lot.

At least PSA at .01 so one bit of good news,

They do seem to have had a lot of difficulty because of op or they just did a poor job.

If the latter it could be worth getting a second opinion, you could ask your GP to refer you somewhere else or go private just for an opinion but you would need to get hold of copies of the MRI's to take with you, u can request them.

Salvage RT is an option but think u need to get a more conclusive MRI to help u decide.

Good luck, let us know how it goes

Steve

Hi 914 Soldier, sorry to read about your situation. I had recurrence a year after surgery and one of the areas was a seminal vesicle remnant so I guessed they couldn’t remove all of the seminal vesicles. Hopefully someone can confirm that or explain it.

Your recent MRI was bound to be inconclusive I think because you are on hormone therapy and this has pretty much stopped the cancer in its tracks for now. I had all my pre salvage radiotherapy done before hormone therapy started for that reason. Hope you get a way forward on this.

1. Hi 914 … sorry it’s turned out like this but it’s a major operation with risks … similar situation for me 15 years ago but I’m still here  … surgeon did his best but it had burst out of the gland and we didn’t know until he got in there … had all treatments in the 15 years and some worked better than others and just had chemo Cabazitaxel … keep your chin up you have lots of life left … it may just be a different life because of the things it affects but lots of help out there as well along the way … can give lots of detail so message me