another newbie

  • 32 replies
  • 188 subscribers
  • 2355 views

Afternoon all. I thought it was time to join up.

I was diagnosed in October and have been on the hormones since. My RT starts next Tuesday for 7 weeks. My treatment so far at Colchester has been excellent.

I'm 71 and had been getting tested for years as my dad had it from about my age and died aged 77 in 1991. But that was so long ago in medical treatment terms that it's almost irrelevant.

I'll be interested to hear of your RT experiences, how it makes you feel. The hormone jabs really take it out of you. Hot flushes after any physical effort and at random other times. Do you get that weird fizzing feeling across the chest before the flush? Sluggish, forgetful, not that anyone who knows me spotted the difference.

It took me 3 goes to get through the CT scan; 1) too much wind! 2) total blockage due to enforced change of diet! 3) back to regular diet and hope for the best.

I had a TURP in early December. I had been on Mirabegron for quite a while to help me pee, although I was never aware of any real benefit, and left it off, with the agreement of my GP after the op. Then I started getting bladder spasms and peeing 20+ times a day. Thank heavens for Tena pants. Then it turns out that the cure for the spasms is Mirabegron and it works great. I still wear them when I go out, just in case, but not at night as, for some reason, the lady is not turned on by them.

Good luck chaps.

  • They will with my memory!

  • Steve's right, the 35 fractions will fly past and come May you won't know what to do with your time!! 

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Brian, Scutch,

    Brian are you still feeling in limbo?

    Steve (SteveCam)

  • Steve - Just posted on Dunit - yes - I don't have an appointment until 18 August - It's strange this being well!!

    Brian

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Just seen it.  I'm off on my travels this afternoon, Lake District for the weekend.  More walking!

    Steve (SteveCam)

  • I’ve just replied to Brian on ‘dunnit’ but I really agree with Brian, it is a state of being between having cancer and not having cancer - treatment with the intention to cure - hoping for the best and fearing the worst. 

  • Enjoy it Steve - don't forget my mint cake!!

    Brian

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Hi all, finished my RT on Tuesday and rang the bell. Got my follow up appointment in about 6 weeks. I agree it's like being in limbo with the unknown. On top of the stress my wife and I are going through, I now have the DWP contacting me about not being in work.

    I am employed and until the start of my RT was working 20 hours a week and my employer says I can return as and when I feel well enough. I have been given a 2 month sick note by my consultant so don't know what the DWP want me to do.

    Last year they told me to apply for a job as a first response firefighter.

  • Hi OW - That's magic, I hope you are feeling well and not too many side effects of the RT. Ringing that bell is a somewhat magic moment. 

    The basic rules with sick pay are, your employer's sick pay terms are followed first and if they have no specific terms providing you meet the employment criteria of past earnings as long as you have "fit to work" (sick notes) you are entitled to up to 28 weeks of Statutory Sick Pay, paid by your employer. I hope this helps.

    There are enough issues with being ill - the DWP are the last thing you need sticking their oar in. 

    Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Hi Brian, so far I'm just feeling very tired but I suspect that is "normal".

    My employer has been very good. They offer up to 6 months company sick pay for certain conditions - cancer being one.

    They have adapted my working times and duties to support me, can't fault them.

    Like you said, just don't need DWP sticking their oar in.