As I am sure many of you know, one of the many joys of the PC Hormone Therapy is the side effects. I suffer badly at night with flushes and sweats. My Cancer Nurse has suggested prescribing Medroxyprogesterone Acetate to help ease these and I wondered if anyone has any experience of this drug? I know some drugs can cause Diabetes and so wanted to check experiences.
By way of info for anyone suffering with disturbed sleep. I have discovered CBD oil and drinks. they massively calm me down if my hormones start to bounce around and get me agitated (which happens once a week or so). I have slept better since using them. If you are interested best check with your GP first- I did.
PC - the gift that keeps giving!
Thanks all.
A
I had Cyproterone Acetate for hot flushes but the NICE website list similar cautions for Medroxyprogesterone Acetate, diabetes being quite high up the list.
See here:
Thanks Sean's. Interesting link. Kinda seems that every option has potential side effects. So uts either out up with what you know or try something I maybe get some new issues to deal with, or maybe it will be fine. Toss a coin time! A
Hi SquashPlayer,
My partner has just started taking Medroxyprogesterone Acetate. He's having a lot less and milder hot sweats and he is really happy with the results so far. I will checkout the link from Seamus47 though. I think having regular bloods will show any changes if it's having a negative impact and we will keep that in mind.
Best wishes,
L
Hello BarryW, I too was on medroxyprogesterone shortly after RT a 10 week course, stopped taking them after 7 weeks as i hadn't had a sweat for 2 weeks, and i was told they were developed for post menopausal women, which at that time in treatment we were not far off being anyway, take care, Eddie
Hi Eddie, Thank you for the reply, it does seem to be working well for my partner with the hot sweats. I’ve just read your bio and I’m slightly open mouthed at your journey so far. I’m thankful to read such an honest account as it’s helpful to understand more about how this cancer works. I’ve been under the illusion that my partner has been cured after RT even though I know he has no cure. (Some weird, positive way of thinking?) But I’ve noticed a serious decline in his physical and mental state over the last year which I find all consuming and hard to adjust to. I know there’s more going on inside than either of us want to admit and I suspect that even though his PSA is remaining low that could be masking other problems yet to come to light. I hope you get on well with your next appointment, it sounds like you have good consultants and treatment. I’ll be dropping in to your bio to see how you are.
Best wishes L
Hi BarryW, I am so sorry to hear you and your husband are having a tough time. When i first joined the community you were the first to answer my post and as your husband and me had a lot in common, age, diagnosis and treatment at roughly the same time i always read your posts if they came up. and in response to me saying i was terminal you said, dear laws!!! treatable with a dash of denial which has stuck with me, I think we both know we are fighting a losing battle, but what's the alternative, I have not had a scan since RT in April on lower abdomen so have no idea how it went, like you my PSA dropped to 0.08 but if your PCa has already spread it's relevance is reduced, but i have had 3 on my lower spine and 2 lung scans, initiated by Drs so i guess my cancer will spread more.so i am going to live by your words for as long as i am able, take care, Eddie
YES!!! Treatable with a dash of denial Absolutely. I need to get a grip. I think winter can make me more gloomy. I just realised while doing my over thinking in the wee hours, that the PSA is not going to monitor bone metastatic activity, am I right? I'm still not sure. That's what had me crashing for a bit, but of course that why he's having HT to suppress that. I've now decided to book a holiday, which is a perfect denial and a very lifting solution to grey days.
You take care too
HelloBW I do like happy posts on the Community!! I have checked and you are a member of the Travel insurance forum for cancer patients but just in case anyone else fancies a holiday the link is here.
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