I started the PC journey back in August 2022, and having been backwards and forwards with tests and consultations, I opted for Hormone Therapy followed by Radiotherapy.
I started on an course of bicaltumide and had my first hormone injection (in the bum) on 23 Dec. I have an appointment to see the radiotherapy team in a few weeks with a view currently to four weeks radiotherapy in March, and my next hormone injection on 9th June (Blaydon Races Day).
I posted "Active Treatment Recommended but which one?" and the support there was great, and I found out about Maggies at the Freeman Hospital, Newcastle. I now go once a week where we have a quiz and chat about our lives with PC and other cancers.
I am suffering some of the side effects of HT, with the hot flushes which are a nuisance, and fatigue which is a real pain. I sleep reasonably well, excercise moderately, and eat a good diet but the fatigue is frustrating. I do have some nights of insomnia where you lie in bed with nothing going on in your head - Weird!!
I'm still at wrok and working from home. I'm an administrator.
For those of you on a similar journey to mine, I would recommend going to a support group like Maggies, as it helps put your journey into perspective with others able to understand your situation, and you can see and sense other people in the same boat as you. You are not alone.
Visit www.prostatecanceruk.org, which has loads of understandable info.
Above all, try to stay positive and recognise, every day, a positive action/result and plan "a look forward to" for the next day.
To be honest it's a journey I would rather not be on, however, I'm on it, and am going to make the best of it. Along with the tremendous help of Cancer team at the The Freeman Hospital, Newcastle, Prostate Cancer UK and MacMillians Online Community I am planning not be to defeated by Prostate Cancer.
Hope the above helps.
I just felt I should put words to paper (Online)
Best Wishes
Richard
Hi Richard - Well said, you have the right attitude, think positive and you will beat this cancer.
I have been on HT for over 12 months and managed to reduce the hot flushes from 2 hourly to 5 minuets by taking Sage tablets - it doesn't work for everyone but worth a try.
Best wishes on your journey.
Kind Regards - Brian.
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Hi Richard
What is your condition as in stage etc, being positive is a must even after six and a half years I still am determined not to let this get the better of me, maggies is a great place, chat about whatever although I’ve only been twice, bit to far ro travel.
I find all cancer teams are wonderful people, they could tell some stories I bet, With my condition I go every three months great team at Hope hospital Salford with Withington a longish bus ride away, so keep me going you wonderful people.
Stay safe
Joe
Evening Brian, Thanks for the thumbs up and possible good advice. My hot flushes aren't very long but I will bera in mind sage tablets, just in case.
Loike wise best wishes on your journey.
Richard
Hi Joe, from my lastpost my cancer details are/were
"My PSA was 4.2 up from 3.9 and MRI showed PIRADs 4/5. The prostate biopsy confirmed Gleason 7 (4+3) and my whole bone scan showed clear, and my lead consultant recommended Active Treatment so I now have to decide on surgery or Hormone Therapy and Radiotherapy."
I decide to go for HT and RT.
Even if you can't make it to Maggies there are othe cancer support groups near all of us, as long as youcan c=search for them on the internet, and if you can't do internet from home your local library will be able to help.
They are great as well.
Thank goodness there are people who want to help those of us with cancer and as the advert goes, "We will beat Cancer"
Take care and stay safe.
Richard
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