High PSA results

Hello Guitar Man

Sorry to hear you are stuck with this disease, I hope you can continue with a reasonable quality of life. I know what you mean about the waiting game in the first month, I'm 2 weeks in since the 1st PSA result and waiting for a MRI, your mind works overtime on what this could mean, but I mustn't prejudge the results.

Best Wishes

Bob 

Wow - my initial diagnosis started with PSA 800 - 6 months later down to 0.4, just bounced up to 1.8. At diagnosis Bone scan lit up like Christmas tree, particularly pelvis spine hips etc. Prostap and enzalutamide and I’m still going, hopefully for a while yet. New scans in next week or two ready for reviews in March. Other than a bit tired and annoying hot flushes I feel OK. If you manage to avoid fractures (unfortunately I haven’t) or don’t have weight bearing or bending issues then life isn’t hugely different to normal. Don’t be surprised to feel a bit of a fraud when you’re not feeling ill and everybody’s giving you the big aren’t you brave routine. Stick wit it, ignore the stats on survival rates and live life to the full. Good luck

My initial diagnosis in 2019 was PSA 109 then got biopsy done Gleason 9 

Grade group 4

T3

CPG 5

Had Radiotherapy it failed my cancer aggressive I didn't want to have ADT therapy it made me sweat every hour 24/7 it was awful couldn't sleep like someone throwing a bucket of water over me all bedding soaked out shopping it was the same just burst out sweating just like female menopause.

I found out later the ADT therapy is chemically Castrated stopping your testosterone which turns you into a eunuch basically which the oncologist don't tell you.

So I'm just now waiting for the cancer to progress further & in the end my death which I've accepted I'll be 60 in July 2023.

Will I see 61 or 62 they give you 5 years of life before death.

I've got 4 children so my legacy goes on & I've had a great life exceeded in everything & most of all I have always had faith so death doesn't worry me. 

I've got several scans penciled in for them to see if it's spread further but it doesn't worry me as I did everything in my power for 2011 to 2019 to inform my GP something was wrong but he didn't join up the dots and sent me away saying I was fit & health at 9 stone!

So for 8 years my cancer grew & spread & my GP just missed all the signs even when I told him I was peeing 16 times per night!

So I'm not bitter or fearful but I spread the message to other men to watch your health regarding prostate cancer it's the number one killer over taken breast cancer in Uk

Hi Chazmonty - I don't know how to reply to you and I am not usually short of a reply.

All I can say is you take care and I hope you get many more years in without many problems, and trust in your faith to carry you through.

Like you I try and spread the word to all. Me I almost live in a Prostate Cancer hoodie and try and put the word out there.

My best wishes and prayers go with you.

Kind regards - Brian.

Hi Chazmonty

its astonishing that in this day and age we encounter so called professionals that fail so miserably - my initial GP responded to my concerns over the pain in my hips at night when I asked her if I had cancer with eyes to the heaven and a tart reply to my wife of “he’s a bit melodramatic isn’t he?” And when I told her I’d lost 3 stone “Well done”

Never mind - fun stories to tell and an opportunity to do the classic Spike Milligan - I told you I was ill.  
Quite right not to be bitter and warn everybody we can.

Mine is so far gone biopsy and Gleason scores are a waste of time, Bone scan lit up like a Christmas tree straight into chemical castration- you’re correct they don’t tell you this but it’s not rocket science. Decided to give its go mainly because it helps with the pain by slowing the little bastard down.

Having hellish hot sweats but they pass and then I can have some real life even if I’m now restricted to wheelchair and sticks - still try to get out with wife an dogs.

Admire your approach to death and agree - Native American Hoka Hey, today is a good day to die as I’ve lived a great life.

Faith is a strong thing, I know there is an afterlife so not worried either but I’ve chosen to stay here as long as possible for my wife. Plus I always joked that I wanted to live long enough to be a burden on society.

I'm 62, will I get my three score and 10 like my Dad did and believed that’s all we were entitled to - who knows. Don’t pay any attention to the survival stats they mean nowt at individual level. It’s whether you wake up or not in the morning that counts - I’m not normally into all the positive inspiration phrases bandied about but I do like the “don’t count the days, but make the days count” approach. 
Treat it like the lottery it’s 50:50 - you win or you don’t, and the odds remain that every time. 
Every morning I wake up and think of a line from one of my favourite films The Outlaw Josey Wales - “whupped ‘em again Josey”

Best wishes and hoping your path will be a painless one.

Sorry you're going through this. You can't assume anything with just a PSA level. So you just have to wait until you have gone through the diagnostic procedures until you have your full diagnosis, and this will probably take 6 weeks or so. Prostate cancer rarely has any symptoms - the urinary symptoms people usually refer to are much more likely to be caused by an enlarged prostate, which is not related to prostate cancer.

It's an anxious time waiting to see if you have a cancer diagnosis, but there's nothing much you can do until you know your diagnosis.

Hello. My husband only found  10 days ago we have not told family yet either. The very next day our doctor had us at the hospital with all tests explained. 8 biopsies and hormone injections. He was in so much pain that could not wait for the CT scan but he had that in Thursday so now waiting to see if they will offer chemo as he has been told no surgery as PSA was 2023 and as he is in pain lower back they say it will be there too. We are in shock to say the least my hubby is super fit and runs most days. We live in hope. There are lots of positive people in this forum and reading others journey has given me hope. Take each day as it comes and try and talk to each other which we find difficult. Take care. 

 C

Just had the results of my MRI scan. Score of 4 with 3mm, 4mm and 6mm lesion. Interpreted as being contained within the prostate. Now awaiting a bone scan before biopsy.  

Hi,

It's very difficult.....my husband has PSA level at 284  so very high

Waiting for treatment to start ....look after yourself, you will get alot of support on here x

Hi....my husband PSA is 284 ....It has come away from the prostate, waiting for treatment to start....he is a runner and cycling......All he keeps saying is so go for keeping fit , but being fit helps to get through treatment. ... Sending hugs