Hello all, just before Christmas I was diagnosed with Early (Localised) prostate cancer.
It was a shock and with Xmas to get through it has been difficult. Apart from my wife I haven't told anyone except my brother-in-law as he has it too. One of my daughters is abroad for a year until April/May 2023. I don't want her to find out as it will upset her I think. I found this forum and can I say what a relief it is to talk with others in the same boat.
I had a PSA reading of 2.1 last year (Oct 2021) and it went to 4.7 (Oct 2022) this year. After rectal examinations (which didn't appear to reveal anything) I went for an MRI scan. Then I had a biopsy. The results showed a Gleason reading of 3+4 but I'm not sure what my CPG number was. The nurse is away until Jan 3 so I can get more info then.
They gave me 3 options for treatment and a lot of documentation on: Surgery, Brachytherapy( the seeds), Radiotherapy. I'm 67 and fit enough but wondered if any out there would suggest the best treatment with the best outcomes. I think the Doctor I saw said that the outcomes were similar in all treatments but I can't quite remember as I was a bot shocked at the time.
I am usually ok but sometimes it gets me at night and I probably over worry. I thought I might ask my GP for some light sleeping pills to help. Do other do that? And is the GP someone I should talk to regularly or just deal with my assigned nurse/doc now?
Wishing all on the forums a good New Year and the best for 2023.
Thank you.
Mark
Hi Mark and welcome
Sorry to hear but it does sound like a non aggressive type so potentially easily treatable
As far as treatment options go, surgery , a major op and potentially more issues with ED and urinary probs but not everyone has these and some dissipate over time.
Brachy and RT simpler but can take longer if having Hormone Therapy as well. Unless u have any pre existing bowel conditions side effects from RT usually go away after treatment finishes.
One thing to note, if u have surgery and the cancer returns u can still have RT but very difficult the other way round.
See what others say.
Good luck
Steve
Hi Mark.
Like you I joined the forum today and feel the relief from making contact with others going through the same thing.
Sounds like you’re a few weeks ahead of me, I’m waiting for my Biopsy.
Also like you, I’m alright most of the time but dread going to bed, the worrying is overwhelming.
I’ve tried to be productive by doing some research. I’ve read quite a lot of articles from the Cambridge Urology Partnership, some of these guys are at the forefront of new procedures and treatments.
Would be good to keep in touch and share thoughts on treatment options?
Hope you manage to get some sleep soon, if it eludes us both I’ll think about you.
welcome Mark and hi again Daniel
once you’ve found your cure for insomnia please do let me know! I fall asleep ok and wake up a couple of hours later and my first thoughts are always to do with the prostate cancer - the fears, the anxieties and the sheer pain I feel at the thought of what my husband is having to go through. I am dreading the start of radiotherapy on the one hand and the other I just want it to be over and done with! I’ve consistently said this illness affects partners as badly as the patient!
re sleeping tablets. I’ve tried zopiclone as prescribed by my GP but they leave me horrendously hung over and, curiously, in a very depressed mood. But… we are all different. I think, too, that they may be addictive? Not sure, though.
take care
Hi fellow Daniel, happy to zoom with you if it helps. I’m far out the other end and still clear, so I know stuff. Happy New Year
Many thanks Daniel, that could be really helpful.
Thanks Steve. Yes I’v been told that surgery is not usually available after you’ve had RT.
I’ll do some more talking to my doc and hopefully I can find out which is the best way forward.
Happy New Year by the way
Mark
I will report back on anything my gp suggests to help me sleep. I usually listen to a bit of radio or a podcast to try to sleep but the worry does get to you.
My wife is being very supportive but I don’t like to burden her with my fears so this forum is invaluable! I want to tell friends but not yet until I know what treatment I will have.
All the very best to you and your husband at this difficult time
Mark
Hi Daniel
if you do sort a zoom out do let me know.
cheers
Mark
Hi Daniel
Yes definitely keep in touch on treatments. I hope your biopsy turns out be nothing. The worry is a problem which I guess is entirely natural. I play some radio and podcasts with an earbud at night to help me sleep. It’s been bad waiting through Xmas to talk with my doc again. Everyone being so jolly at Xmas is hard to deal with I know.
We’ll chat more to keep our spirits up. I’ll keep you posted on my developments on treatments.
Happy New Year and all the best with the sleeping.
Cheers
Mark
Thank you, Mark. I fully appreciate we are all different but I do so much wish my husband would talk to me more! I have, at times, felt so shut out and the reason I joined this forum was cos I needed to talk and he didn’t want to talk!
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