Mental health

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Hi I am new to the group. 

I have been struggling with my diagnosis.

Due to have HIFU on right side and active surveillance on left side.

I am finding it very hard to deal with the diagnosis and knowledge that I will still have cancer left in my body.

Is it normal to feel this way?

Thank you.

  • Hi Stephen

    I think this is normal especially in the early days after diagnosis.

    You don't give any stats which would be helpful.

    That's a new one on me, treating one side and leaving the other on AS 

    Is it a NHS treatment or have u gone private

    Regards

    Steve 

  • Hi Steve 

    My gleeson score on the right side is 3+4 and 3+3 on the left.

    Cancer is localised and my treatment is on the NHS.

    Many thanks

    Stephen 

  • So sounds easily treatable, just not heard of doing 50/50 before, would it not be better to treat the whole gland or do AS on the whole gland.

    Do u know the size in mm of the two tumours

    1. Steve 
  • Left side is a scatter of cancer areas about 2mm each hence no treatment.  The right side is 6mm.

    I could have whole gland treatment but only 50 and I don't want the side effects.

    Stephen 

  • So not too big, as long as not near the capsule edge I would consider AS for whole gland. Otherwise you'll be looking at potentially 2 treatments.

    Thouught that HI fu was considered for less in term of side effects.

    Have u been offered external beam to cover the whole gland.

    The latest type is  very focused and minimal side effects.

    I had this 5 years ago, no side effects now.

    I would do more research and scrutinize everything, time is on your side, 

    I presume your PSA is not too high 

    Steve 

  • PSA is only 3 however,  been advised I need treatment on right.

    AS been offered in very short term however,  can have either bracky, whole beam radiotherapy or prostatectomy. 

    I want treatment anyway and HIFU is likely to extend the time before I need whole gland treatment.

    Stephen 

  • Ok , am not an expert on hi Fu but see what u can find out about success rates for hi Fu.

    External beam and surgery roughly the same success. 

    All I would say , if it was me , wouldn't want ,in effect, treatment done twice, just my opinion, see what others say 

    Steve 

  • I understand what you are saying. 

    Quality of life is important and HIFU is my preference.  Ideally whole gland but my circumstances mean only 50/50.

    It is frustrating but I know every individual is different and things don't always work out the way we want.

    I would be interested to hear the opinions of others.

    Stephen

  • Best wishes anyway, keep in touch/posting 

  • Hi Steve

    Couldn't agree more I wouldn't want to have to go through this again.

    Regards

    Stuart

    Trying to get fit again!