New Member - on the PC Journey

Sorry, moved this from General Discussion to Newbie area!

Hi BB 

Sorry to hear about the rising PSA, think there are couple on here been in same situation. Hopefully they will post.

Problem is that a PSA still so low it's not showing on scans that's probably why they are suggesting another in 6 months.

Probably Radiotherapy treatment is the answer but assume they need to know where.

I know that waiting is the worst part of PC, hope u get a couple of positive replies from others who have been in your position 

Best wishes

Steve 

Thanks, Steve.  Must admit that the lack of information / certainty is the most difficult thing.  From post surgery, when I asked about the histology report and was just told 'No problems ' to yesterday when the consultant gave minimal details of the MDT report, I find it difficult to cope with the lack of information.

By day, I'm an engineer and make plans and decisions based on evidence, so the information vacuum is challenging for me.

Hi BB,

Sorry to read about your current situation. I personally wouldn’t be happy about waiting 6 months for another PSA test. I would ask about an mpMRI scan and a different type of PET scan to see if they pick up anything. When I had recurrence in 2016 the MRI and the F18 choline PET scan picked up different areas of activity. The F18 choline scan is an older tracer now but it did pick up activity. The evidence is that the earlier salvage radiotherapy is started the better the outcome. 

Hello BB. You have the right to the information in your post surgery pathology report.. Do not take no for an answer. Unbelievable that it is being withheld from you.

Sorry, I had put a post on to thank all for the replies and apologise for the lack of response but it no longer appears to be here.  My wife suffered a series of heart attacks and was admitted to hospital by ambulance at 0430 on Saturday.  Since then, I've been trying to field all enquiries, keep the house going, visit her in hospital and take all requested clothing, together with a full time job.  I've been monitoring replies by email on the phone but it's difficult to see the forums well enough to type replies.  I have a telephone consultation booked with my GP on Friday to go through this.  Thanks, all.

Sorry to read about your wife BishBosh. You are dealing with an awful lot. Hope your wife is recovering and best wishes fir Friday.